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uniQure Trial Proceeds; Voyager Receives Regulatory Feedback
by admin
This week uniQure shared a press release stating that another two patients have entered their HD clinical trial. The drug, AMT-130, is an experimental gene therapy that…
New Research on CAGs, The HDSA Podcast, Online Surveys
by Kelly Andrew
HDBuzz: “How many is too many?” New research on CAGs HD is caused by an expansion of C-A-Gs in the…
Rare Disease Day, CHDI, Convention Scholarships
by Kelly Andrew
Celebrate Rare Disease Day with HDSA on February 29th When you have a rare disease, you face two battles –…
Research Participation, Trial Stats, Upcoming Webinar
by Kelly Andrew
Interested in HD Research? Get Connected with Opportunities to Participate! If you’re interested in learning more in 2024 about HD…
Research Participation Opportunities & Upcoming Webinar
by Kelly Andrew
Online Surveys: Participate in HD Research from home! Online surveys are a great way to make your voice heard…
VICO Therapeutics, INGREZZA update, HD Faculty Opening
by Kelly Andrew
VICO Therapeutics on Help4HD Podcast Last week on the Help4HD podcast, host Lauren Holder was joined by Dr. Katja…
CHDI Therapeutics Conference: Prilenia shares data from the PROOF-HD trial
by Kelly Andrew
CHDI Therapeutics Conference: Prilenia shares data from the PROOF-HD trial The CHDI Therapeutics conference is ongoing this week in Dubrovnik,…
Thank you Volunteers, Buzz on brain cells, Next Week in HD
by Kelly Andrew
Thank you, HD Research Volunteers! This week, HDSA is celebrating National Volunteer Appreciation Week. This goes for research, too! We’d…
Thank You Thursday, HD-ISS, and Gene Therapy 101
by Kelly Andrew
Happy Thank You Thursday from HDSA Support from HD families like you is what allows HDSA to fight for a…
Summaries of 2021 HDSA-Funded HD Human Biology Projects
by admin
Alby Richard, MD, PhD Mentor: Samuel Frank, MD Oculomotor Learning as a Biomarker in Huntington’s Disease (HD) patients Despite the…
HDBuzz Covers the CHDI Conference
by admin
CHDI is a privately funded HD research foundation whose mission is to further development of HD therapies. This week, they’re hosting…
Webinar TODAY: Roche Community Update on GENERATION-HD1
by admin
Since the announcement in late March that dosing of tominersen in the GENERATION-HD1 trial had been halted, HD researchers and…
Volunteer Appreciation Week
by admin
This is Volunteer Appreciation Week and we would like to thank all the brave individuals who have volunteered their time…
The 36th Annual HDSA Convention Goes Virtual!
by admin
Dear Friends of HDSA, I hope that you and your family are well as we continue to navigate through the…
Research Spotlight: Telemedicine for Huntington’s Disease
by admin
Participants diagnosed with HD, ages 18-70, in the Chicago area, are needed for an HDSA-funded study on Telemedicine at Northwestern…
Triplet Therapeutics: Clinical Candidate and Natural History Study
by admin
One of the hottest topics in HD research over the past several years is the idea that CAG repeats in the HD…
Thank You for Participating in Virtual HDSA Convention
by admin
We’d like to extend a huge thanks to all of those who participated in HDSA’s Virtual Convention from June 4th –…
HDSA Announces Recipient of the 2020 Berman-Topper HD Career Development Fellowship
by admin
The 2020 HDSA Berman-Topper fellowship has been awarded to Dr. Yasaman Gholamalipour for her proposal entitled “Development and delivery of CRISPR-Cas9 nickases to correct…
CHDI’s Huntington’s Disease Therapeutics Conference
by admin
This week marks the 15th annual HD Therapeutics Conference, hosted by CHDI, a private foundation devoted to HD research. HD…
PRECISION-HD2 Results from Wave Life Sciences Expected in Late 2019
by admin
Wave Life Sciences is conducting two early safety studies of huntingtin-lowering therapies, called PRECISION-HD1 and PRECISION-HD2. In a business update…
