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Huntington’s Disease Featured on ABC News
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Huntington’s disease got the spotlight in early July on national news in a story featuring two families grappling with the diagnosis. The 15-minute segment…
First HD Patients Dosed in uniQure Gene Therapy Study
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This week marks a major milestone in HD research: the first two patients were dosed in the world’s first gene therapy…
HDSA Announces Recipient of the 2020 Berman-Topper HD Career Development Fellowship
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The 2020 HDSA Berman-Topper fellowship has been awarded to Dr. Yasaman Gholamalipour for her proposal entitled “Development and delivery of CRISPR-Cas9 nickases to correct…
Upcoming HDSA Research Webinar
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We are excited about an upcoming HDSA research webinar this coming Tuesday, May 19th at 12 PM Eastern. This work, presented by Annexon Biosciences, was born out of studies conducted by HDSA…
May Is Huntington’s Disease Awareness Month
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#LetsTalkAboutHD is a social media initiative during Huntington’s Disease Awareness Month in May to encourage families to share their experiences…
HD & COVID-19 PANDEMIC RESOURCES
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We know the COVID-19 pandemic is a difficult time for all and may be particularly challenging for those living with…
Louise Vetter Discusses HDSA’s HD Trialfinder
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HDSA’s President and CEO Louise Vetter spoke on Friday, March 13th with James Valvano of We Have a Face, an organization dedicated to broadening global…
HDBuzz Coverage of CHDI’s 15th Annual HD Therapeutics Conference
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Our friends at HDBuzz created phenomenal real-time summaries of the presentations at the HD Therapeutics Conference held by CHDI last week in Palm…
Research Survey on HD & Romantic Relationships
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HDSA works with students and researchers to review HD research surveys and make them available on our survey page. Participating in…
Wave Life Sciences Announces Data and Expansion of PRECISION-HD Studies
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Happy New Year from HDSA! To wrap up 2019, we received some exciting clinical trial news. Wave Life Sciences is conducting…
HSG Announces New Phase 3 Study To Test Drug For HD Chorea
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The Huntington Study Group issued a press release about a new study to treat the movements associated with HD, known as chorea….
Insights on HD Age of Onset
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Several groups of scientists have reported recently on how CAG length “hiccups” or expansions during life can influence the age of…
“Hiccup” in HD Gene Contributes to Age of HD Onset
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The age that Huntington’s disease symptoms appear can vary a lot from person to person. For decades, scientists have been…
Participate in HDSA’s Survey About PGD-IVF
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HDSA is committed to providing individuals and families impacted by HD with the resources they need to make informed choices….
Gene Silencing Therapy for Amyloidosis Approved in the UK
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Last week saw the approval of a genetic therapy for a rare disease called hereditary transthyretin-mediated amyloidosis (hATTR amyloidosis). As…
Roche/Genentech Amends GENERATION-HD1 Study
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On Thursday, March 21st, Roche/Genentech released a Community Statement about changes to the GENERATION-HD1 study, the clinical trial testing huntingtin-lowering…
Gene Therapy 101
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In addition to ongoing clinical trials of Roche/Genentech and Wave huntingtin-lowering therapies, a number of other companies are developing drugs…
Annual CHDI Huntington’s Disease Therapeutics Conference
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This week in Palm Springs, California, CHDI Foundation hosted the 14th Annual HD Therapeutics Conference. This yearly conference draws academic…
First Patient Enrolled in Pivotal Huntingtin-Lowering Trial
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This week, Ionis Pharmaceuticals issued a press release stating that the Phase 3 trial of the huntingtin-lowering therapy formerly known…
HD Buzz on Huntingtin-Lowering Strategies
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The Ionis/Roche/Genentech Huntington’s program has received a lot of press in recent months. However, several additional companies have been working…
