Applying for disability benefits is a necessity for most HD families, but the disability process is often complicated and overwhelming, whether it is Social Security disability or private disability. It is important for individuals with HD to apply for disability benefits as soon as they are no longer able to work because there is a time limit, both Social Security benefits and private benefits expire. Please use the information and resources located below to help you navigate Social Security disability and the application process. The requirements and application process for private and employer provided disability benefits are different for every provider.
If you have questions, please contact Allison Bartlett, Esq. at abartlett@hdsa.org.
PLEASE NOTE: If you are ready to start the disability process or have questions about your private disability policy, you will need to contact your policy holder or your human resources representative directly.
General Disability Information
Social Security Process infographic
Social Security denial process infographic
Application Resources
Disability Onset Date Worksheet
Sample HD Background Information
Questions to Determine Symptoms and limitations
HDSA Disability Appeal Online Application Guide
Application Under Review Resources
How to Follow Up with Social Security
Following Up with Social Security Infographic
Medical Support Resources
Financial and Legal Resources
Disability & Legal Resources Preparation Checklist
Financial and Legal Preparation for Prodromal/Pre-symptomatic HD
Late-Stage disability checklist
Financial Planning and HD Webinar
Understanding Financial Planning and HD
Legal Planning and HD: Estate Planning Webinar
Understanding Legal Planning and HD
Insurance Resources
Laying the Groundwork for Disability
Understanding Other Insurance and HD
Understanding Health Insurance Benefits
