Healthcare and future planning

GENETIC TESTING
AND YOUR RIGHTS

Information on testing for the HD gene as well as an in-depth look at the Genetic Information Non-Discrimination Act (GINA). >

DISABILITY BENEFITS
AND HD

Information on coordinating supporting evidence, assessing eligibility, submitting claims for benefits and drafting arguments if it becomes necessary with the Social Security Administration, as well as Long Term Care (LTC) Insurance policies. >

LONG-TERM
HD CARE

The goal of HD long-term care services is to help maximize functioning and quality of life when the affected individuals no longer able to live independently. Learn more. >

BRAIN DONATIONS

Brain donation is an extraordinary gift in the name of science and medicine that can contribute to the greater knowledge and the greater good of the HD community. >