Search Results for: donation
Research Webinar, Renewing HD brain cells, HD History
by Kelly Andrew
HDSA Research Webinar: Leaving a Legacy, Brain Donation for HD Research Brain donation is an invaluable gift that makes a…
Research Fellows, HD Awareness, Annual Convention
by Kelly Andrew
HDSA Awards 2023 Berman-Topper Family HD Career Development Fellowship This week, HDSA announced the newest recipient of the Berman-Topper Family…
Rare Disease Day, Teva’s Austedo-XR Approval, Research Survey
by Kelly Andrew
Celebrate Rare Disease Day with HDSA on February 28th When you have a rare disease, you face two battles –…
Team HDSA Raises More Than $100,000 at the New York City Marathon
by admin
TEAM HDSA RAISES MORE THAN $100,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA…
Celebrate #GivingTuesday with HDSA
by Kelly Andrew
At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of Huntington’s disease and for your…
King’s College Hockey Fights HD
by admin
On Friday, January 27, 2023 the King’s College men’s hockey team will faceoff of against Alvernia University at the Revolution…
Celebrate HDSA Founder’s Day on September 18th
by admin
55 years ago, Marjorie Guthrie sought out volunteers from across the country and created the first network of support for…
The 37th Annual HDSA Convention begins in ONE WEEK!
by admin
HDSA is excited to welcome the HD community to its 37th Annual Convention in Atlanta, GA in just one week! In-person…
HD Awareness Month: HD in the Media, HD Stories, HD Parity Act, HDSA Convention and More
by admin
The month of May might be drawing to a close, but it’s not too late to turn up the volume on HD…
HAPPY HD AWARENESS MONTH!
by admin
May is Huntington’s Disease Awareness Month, so #LetsTalkAboutHD. Post stories, videos, and photos to social media using #LetsTalkAboutHD. All stories…
HDBuzz covers newly published research on branaplam
by admin
A study recently published in Nature detailed scientists’ understanding of how branaplam, a drug originally developed for treatment of spinal muscular atrophy…
HDBuzz Covers the CHDI Conference
by admin
CHDI is a privately funded HD research foundation whose mission is to further development of HD therapies. This week, they’re hosting…
Raise Awareness of Rare Disease Day with HDSA February 28th
by admin
When you have a rare disease, you face two battles – one being the illness itself, and the other, living…
Miles For Meaning
by admin
Calling all HDSA supporters! You’re invited to join and/or support one of HDSA’s five teams at the 2nd Annual Miles…
Research Wrap-Up: HDBuzz Covers EHDN’s Annual Research Conference
by admin
In September, the European Huntington’s Disease Network brought together scientists and stakeholders from around the world for updates from experts in…
Roche Regroups: New Partnerships forged in HD Research
by admin
After an unexpected dosing halt in the GENERATION-HD1 study nearly 6 months ago, Roche is gearing up to increase their…
New Biomarkers to Track Disease-Modifying Therapies in Pre-manifest HD
by Kelly Andrew
Much of today’s efforts in HD research are focused on lowering huntingtin protein in early stages of the disease. Ideally, clinicians could begin…
GINNY & GEORGIA REUNION
by admin
On Wednesday, May 26th during Huntington’s Disease Awareness Month, the stars and creative forces behind the hit show Ginny &…
The Guthrie Sessions at HDSA with The Barefoot Movement
by admin
THE GUTHRIE SESSIONS AT HDSA WITH THE BAREFOOT MOVEMENT (FEAT. BROOKS HUBBARD) Tune in to a special YouTube performance from…
VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
by admin
VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA Hosted live by Actor Scott Porter,…
