OPENING CEREMONY (RECORDED)
Welcome
Proclamations
A Message from HDSA Chairman of the Board
Steve Seekins
State of the Society
Louise Vetter, CEO
KEYNOTE SPEAKER
Powerpoint Presentation
Mark Holder, PhD
WORKSHOPS
BEHAVIOUR ISSUES/UNAWARENESS AND APATHY
Powerpoint Presentation
Danielle Blinkoff, B.A.
COGNITION AND HD / HD 101
Workshop Recorded
Powerpoint Presentation
Juan Sanchez-Ramos, MD, PhD
MOVEMENT AND HD/PT AND MOVEMENT
Workshop Recorded
Powerpoint Presentation
Meredith Defranco
CAREGIVERS ISSUES / APPLYING FOR DISABILITY
Power Point Presentation
Art Spencer
Social Security Administration
HOW THE HD GEN WORKS
PowerPoint Presentation
Ed Wild, MD, PhD and Jeff Carroll, PhD
YOUTH/TEENS AGES 12-19-TALKING ABOUT HD WITH PARENTS & FRIENDS
Lauren Holder and Lindsey Zan
Powerpoint Presentation
BEHAVIOUR ISSUES / IRRITABILITY AND DEPRESSION
Workshop recorded
Powerpoint Presentation
Peg Nopoulos, MD
COGNITION AND HD/ JOB ACCOMMODATIONS AND HD
Lisa Dorinzi, MA
MOVEMENT AND HD / MANAGING MOVEMENTS
Workshop Recorded
Powerpoint Presentation
Victor Sung, MD
CAREGIVERS ISSUES/ PREPARING FOR THE FUTURE – LEGAL ISSUES
Sean Scott, Esq.
ADVOCACY AND HD
Paul Lee and Jason Gromley, Esq.
YOUTH AND TEENS AGES 12-19/COPING WITH HD
Stacey Barton, MSW, LCSW
Powerpoint Presentation
SCHOOL AND JHD CHILD
HDSA RESEARCH / KEYNOTE SPEAKER
Keynote Speaker
Michael Hayden, MD, PhD
HDSA RESEARCH / HOT TOPICS
HOT TOPICS
Ed Wild, MD, PhD and Jeff Carroll, PhD
COGNITIVE, BEHAVIORAL AND MOTOR ISSUES / EARLY MOTOR SYMPTOMS
Powerpoint Presentation
Juan Sanchez-Ramos, MD, PhD
workshop recorded
CAREGIVERS ISSUES/PREPARING FOR THE UNKNOWN
Changing Expectations of Caregivers
Amy Woodard, MSW
workshop webcast
Powerpoint Presentation
YOUNG ADULTS/COPING WITH A POSITIVE TEST RESULTS
Powerpoint Presentation
Amy Chesire, LCSW-R, MSG
HDSA RESEARCH
PREDICT Update
Powerpoint Presentation
Jane Paulsen, PhD
COGNITIVE, BEHAVIORAL AND MOTOR SYMPTOMS/ COPING WITH OBSESSIVE/COMPULSIVE BEHAVIORS
Daniell Blinkoff
Powerpoint Presentation
CAREGIVERS ISSUES/TALKING WITH KIDS ABOUT HD
Karen Baker and Cori Robin
LAW ENFORCEMENT AND HD
Lauren Holder
workshop recorded
YOUNG ADULTS/FAMILY PLANING
Powerpoint Presentation
Allison Daley
workshop recorded
HDSA RESEARCH
POTENTIAL NEW TERAPHIES
Moderator: Jane Paulsen, PhD
Speakers: Lisa Stanek, PhD (Genzyme)
Powerpoint Presentation
Dr. David Stamler (Auspex)
Powerpoint Presentation
COGNITIVE, BEHAVIORAL AND MOTOR SYMPTOMS/MANAGING COGNITIVE PROBLEMS
Arik Johnson, PsyD
Powerpoint Presentation
workshop Recorded
CAREGIVERS ISSUES/IN HOME CARE OPTIONS
Powerpoint Presentation
Tina Spinks, PT and Kyle Haynes, PT
Senior Home Care
MANAGING LATE STAGE HD
Victor Sung, MD
workshop Recorded
YOUNG ADULTS/TO TEST OR NOT TO TEST PANEL
Powerpoint Presentation
Moderator: Lynn Ross, LMSW
Panel: Tina Hellum, Andrea Olitsky and Jeanine Smith