We know the COVID-19 pandemic is a difficult time for all and may be particularly challenging for those living with or supporting someone with Huntington’s disease. HDSA is committed to sharing the latest updates and resources as we face this public health crisis together.

Below please find resources and communications from HDSA related to the COVID-19 (coronavirus) pandemic.

COMMUNITY UPDATES RELATED TO COVID-19 FROM HDSA’S PRESIDENT & CEO, LOUISE VETTER

March 27, 2020

March 20, 2020

March 18, 2020

HDSA CONVENTION

35TH Annual HDSA Convention Is Going Virtual

HD & COVID-19 RESOURCES FROM HDSA

Here’s the Deal with COVID-19 & Huntington’s Disease

HDSA’s Here’s The Deal tackles important topics to help you navigate through your journey with Huntington’s disease (HD). In this episode Jennifer Simpson, LCSW sits down with Dr. Victor Sung & Dr. Arik Johnson to discuss COVID-19 & HD.

Disability & COVID-19 FAQs

Allison Bartlett, Esq., HDSA’s Manager of Disability Programs, compiled a list of frequently asked questions (FAQs) related to disability amidst the COVID-19 pandemic. If you have questions about how COVID-19 may impact your situation, please contact Allison at

INFOGRAPHICS

Caregiving Tips for HD Families: Finding ways to relieve stress while social distancing

Self-Care Tips

2020 CARES Act

HDBuzz

What does COVID-19 mean for Huntington’s disease families and HD research?

STAYING CONNECTED VIRTUALLY

Get the support you need from the comfort & safety of your home – FOR FREE!

HDSA Online Support Groups

Participate in HDSA’s FREE Online Support groups can offer vital emotional support, valuable advice about community-based resources as well as guidance from other group members about many of HD’s most challenging situations.

HDSA Telehealth

HDSA’s FREE Telehealth Program, powered by Amwell, makes it easy for you to talk to mental health therapists from the comfort of your home.

LOCAL HDSA EVENTS

Due to social distancing requirements, all of HDSA’s in-person events and fundraisers through April 30th are postponed. Additionally, many May events are also being rescheduled. We encourage you to visit the event calendar at HDSA.org for the most up-to-date information about events in your community. View HDSA’s Event Calendar. Importantly, HDSA’s Walk Program is going virtual!

STAYING CONNECTED WITH HDSA

HDSA’s Helpline:  (800) 345-HDSA weekdays between 9am-5pm (Eastern Time)

Email: info@hdsa.org

Social Media: Facebook , Instagram , Twitter , Youtube

MORE COVID-19 INFORMATION

The United States’ COVID-19 (coronavirus) website from The White House, the Centers of Disease Control & Prevention (CDC) and Federal Emergency Management Agency (FEMA)

Centers of Disease Control & Prevention (CDC) COVID-19 (coronavirus)

US Food & Drug Administration (FDA) COVID-19 Resources

DISCLAIMER

The information on HDSA’s website is for informational purposes only.