Posted on July 19, 2018
The Rare Disease Report covers stories about medicine, finance, and advocacy in rare disease fields. Last week an article explored some of the promising therapies in the pipeline for HD. To learn more about advances in HD research, check out HDSA’s page detailing current preclinical and clinical research studies and their current phase of development.
Research Survey on Emotional Well-being
The survey section of our website lists current questionnaire studies from all over the world that have been approved by university review boards and vetted by HDSA staff scientists and social workers. Researchers from the University of Leicester in the UK are seeking help from our HDSA family. If you are at risk for HD and have not been tested, have tested positive, or have been diagnosed, please consider filling out an online survey about emotional well-being. This will provide valuable information about how people affected by HD can be best supported.
Research Webinar on Exercise and HD
Interested in evidence about how exercise and physical therapy can influence HD? Check out a recently recorded HDSA Research Webinar presented by Lori Quinn, EdD, PT, Associate Professor in the Department of Biobehavioral Sciences at Teachers College, Columbia University. In this video she discusses her research on the benefits of exercise and physical therapy and whether these interventions can alter the progression of Huntington’s disease.