Caring for a person with Huntington’s Disease (HD) is many times not very different from caring for a person with Alzheimer’s or Parkinson’s disease. In fact, HD has often been described as having Parkinson’s, Alzheimer’s and ALS all in one disease. HD is progressive so your new resident will gradually become more impaired. But no matter how impaired the person may become, it is important to remember that the person is still able to hear and understand what you are saying; they do not lose their ability to understand. However, persons with HD will have slowed processing (click here for a short description on this condition) which means that though they understand what you are asking or saying, it takes them a few minutes for their brain to process what you are saying and to reply. So it is important for you to give the person with HD that extra time.

HDSA has resources and training materials for you and your staff to assist you in caring for your person with HD. HDSA also encourages you to contact the nearest HDSA social worker (click here for list) to set up an in-service for your staff. Please contact HDSA at 800-345-HDSA or email us at

HDSA also offers continuing education courses for your staff social worker, physical therapist, and occupational therapist. Social workers and occupational therapists can earn free CE units by taking one of HDSA’s courses while physical therapists can earn certificates of completion that can be used towards CE units. Click here for CE courses


In Service Materials

HDSA In-Service for HD (recorded)

HDSA In Service for HD (Spanish recorded)

HDSA In Service for HD Spanish slide deck

HDSA In Service for HD slide deck


Caregiver Guide for Mid to Late Stage Huntington’s Disease for Long Term Care and In-home Care Agencies

A Physicians Guide to the Management of Huntington’s Disease (Third Edition)

Understanding Behavior in Huntington’s Disease

Family Guide to HD 

Family Guide to Nutrition and HD 

Family Guide to Physical and Occupational Therapy and HD 

Family Guide to Speech-Language and Swallowing Difficulties 



Strategies for Managing Aggression


Swallow Function Impaired by HD

Denial and Unawareness in HD


When to Call a Speech-Language Pathologist

When to call a Physical or Occupational Therapist