Community &
Social Support
YOUTH SERVICES
When children are not sure what’s happening to their family because of HD, and not given answers to what they see or an avenue to discuss it, they may create erroneous explanations on their own. Learn how to talk to your kids about HD. >
CAREGIVER SERVICES & RESOURCES
Caregiving is an act of courage, love and sacrifice. As a caregiver, you have chosen to put the wellbeing of a loved one with HD on an equal footing (or even above) your own needs. Learn how to cope with the responsiblity of taking care of your loved one - and yourself! >
HDSA TELEHEALTH
HDSA Telehealth is a free internet-based program powered by Amwell, that brings qualified HD knowledgeable licensed social workers and psychologists to the HD community. Learn how this service can help you. >
HDSA SUPPORT GROUPS
Support groups can offer vital emotional support, valuable advice about community-based resources as well as guidance from other group members about many of HD’s most challenging situations. >
HDSA SOCIAL WORKERS
Social workers offer assistance, information, education and access to community-based services within a specific region. Learn more. >
HDSA RESOURCE LIBRARY
Guide books are available for HD families, caregivers, and healthcare professionals. Learn more >
HDSA CENTERS OF EXCELLENCE
The HDSA Centers of Excellence provide a multidisciplinary approach to HD care and research. >
DISABILITY PROGRAM
HDSA has disability resources to support you
and your family. >
FAMILY EDUCATION DAYS
COEs and HDSA Chapters can partner to host community Educational Days with HDSA grant support. >
PROFESSIONAL EDUCATION
Free, continuing education courses for genetic counselors, social workers, OT and PT. >
CLINICAL TRIALS
The HD Trialfinder is a free, easy-to-use platform to help you find HD clinical trials. >
RESEARCH NEWS
HDSA provides worldwide HD research news via blogs, research webinars, and social media. >
HELPLINE
HDSA manages a helpline for HD families and professionals M-F, 9am-5pm EST, staffed by trained HD social workers.
Call (800) 345-HDSA
HDSA ON-DEMAND
All of our videos, webinars, Convention workshops, PSAs and HDSA produced films can be found on HDSA YouTube Channel for on-demand viewing. >
HDSA PROGRAMS & SERVICES DOCUMENT
Download HDSA's Programs & Services document to share with folks in your community. >
