HDSA & Me is a web series presenting unique programming to educate and to brighten your day. TODAY, March 4th, at 2:00 PM Eastern, join us for a presentation by Dr. Deborah Hall from the HDSA Center of Excellence at Rush University Medical Center. She’ll talk about how to get the most out of your doctor’s visit. Please register here.
On Tuesday, March 9th, we’ll be hosting an HDSA Research webinar about the ongoing KINECT-HD clinical trial, which is testing a drug called valbenazine for HD chorea. Dr. Erin Furr-Stimming and Dr. Daniel Claassen are HDSA Center of Excellence Directors at UT Houston and Vanderbilt. As leaders of the KINECT-HD study, they are uniquely positioned to share information about the goals of the KINECT-HD study and how you or a loved one can get involved. Please register here.
New Webinar Series from the Hereditary Disease Foundation
The Hereditary Disease Foundation Research Spotlight Webinar series features brilliant scientists working to identify treatments and cures for Huntington’s disease and other brain disorders. Speakers will discuss their work in non-technical language. On Tuesday, March 23rd, at 12 PM Eastern, Dr. Ai Yamamoto, a researcher at Columbia University, will discuss her work on a protein called Alfy that is adept at removing harmful deposits of huntingtin from brain cells. Register here to join and learn more about her work.
Huntington Society of Canada Virtual National Conference
The Huntington Society of Canada will host its first ever Virtual National Conference, #HDCon21, on Saturday, March 27th. This event is free to all and will include informative and motivational sessions, along with opportunities to connect and chat with others. It is open to those facing Huntington disease along with friends, family members, caregivers, and professionals connected to the community. Topics range from navigating relationships to palliative care, and the meeting will include an HDBuzz Q&A with Dr. Leora Fox, Dr. Ed Wild, and Dr. Rachel Harding. You can sign up here to join.
HD Insights Podcast
The HD Insights Podcast presents long-form interviews of HD researchers and those helping to shape the future of HD treatment. It’s a great way to learn more about those who have committed their careers to HD and to hear about their journeys. The latest episode is available here.
From HSG: “On this episode, Dr. Nicolò Zarotti, 2018 recipient of the HSG Peter Como Scholarship, discusses the first national guidance on psychological interventions in the United Kingdom for people with HD, ALS, Parkinson’s, and multiple sclerosis, which was recently published by the British Psychological Society (BPS) in liaison with Lancaster University. He describes what he learned throughout the course of that research, and why he considers that publication a “call to arms” for the criticality of psychological support in HD care.”
