2019 was a big year for HD research, and we’ll be recapping HDSA’s research activities, and the field’s major discoveries and opportunities in our annual Research Year in Review Webinar. This year we’re also taking the opportunity to discuss how we’re planning for the future in anticipation of genetic therapies.
When: January 22nd, 2020, 12-1 pm Eastern time
What: Dr. George Yohrling and Dr. Leora Fox will recap HD research in 2019 and discuss plans for the future.
Compensated ($125) Phone Interview Study
Individuals with early-stage Huntington’s disease and a close companion are invited to participate in a research study via phone. If you are eligible and complete the interview, both you and your companion will be compensated $125. Sage Therapeutics and a research organization, Modus Outcomes, are working together to interview people diagnosed with Huntington’s disease and a companion who knows them well. Interviews will be conducted over the phone or in person at a location and time that is convenient for you and will take approximately 45-60 minutes for each participant. They are interested in hearing about your experience with early Huntington’s disease and the way it impacts your life.
You may qualify for this study if you:
− Are willing to participate in a 45-60 minute interview in person near Boston, MA or by phone
− Are between the ages of 25-65
− Have early manifest or pre-manifest HD (>36 CAG repeats, ability to perform some job functions, manage finances with some assistance, complete some household chores, and perform most activities of daily living with minimal assistance)
− Have a companion who knows you well and is at least 18 years old
If you are interested in learning more and to see if you qualify for participation, please contact Teya Lovell, Research Assistant at Modus Outcomes at teya.lovell@modusoutcomes.com or call her at 617-855-5704.
