Summary
- Updates from the Huntington Study Group Annual Meeting
- HDF Research Webinar TODAY: “Brains in a Dish”
- Happy Genetic Counselor Awareness Day!
Updates from the Huntington Study Group Annual Meeting
Last week, members of HDSA’s team joined HD clinicians, researchers, and family members from across the country and around the globe for the Huntington Study Group Annual meeting in Phoenix, Arizona. The meeting is tailored for medical professionals, but also included research talks and posters, as well as a family day. It included presentations on the latest research in HD genetics, data capturing the experiences of research participants and community advocates, and updates from companies developing treatments for HD.
HDF Research Webinar TODAY: “Brains in a Dish”
Join the Hereditary Disease Foundation today, November 9, from 12-1pm ET to learn more about stem cells, how they’re being used in research, and what they can teach us about Huntington’s disease. HDSA Human Biology Project Fellow, Dr. Charlene Smith-Geater, from the University of California, Irvine, will be available for a Q&A session after her presentation. Click here to sign up.
Happy Genetic Counselor Awareness Day!
On the second Thursday of November, we celebrate Genetic Counselor Awareness Day! Genetic counselors are a critical piece of a multidisciplinary HD care team. They help individuals and families decide whether genetic testing is the right choice for them, educate about what a genetic diagnosis means, and provide support to individuals and families during and after their genetic testing process. In addition to offering direct support in the genetic testing process, genetic counselors’ extensive training in medical genetics can make them an important part of research teams, community education initiatives, and more. To learn more about genetic counselors, click here. To learn more about genetic testing for HD, click here.
