HDSA is pleased to announce a new virtual educational series for the HD community. Join us each Thursday at 2:00 p.m. EDT for HDSA & Me: Educate. Engage. Empower.
Over the next 6 weeks, HDSA & Me will present unique programming ranging from talking through social distancing and its effects on HD caregivers to using adaptive yoga, music and dance to brighten your day.
Thursday, April 9
Jimmy Pollard: “Living with HD in Times Like These”
The challenges that the Coronavirus pandemic poses to ourselves, our families, our communities and our country is changing dramatically day by day. As if living with HD weren’t challenging enough already, times like these further increase uncertainty and present even more stressors. Families touched by HD have weathered storms of all kinds before, many for generations. While you’re staying at home, join us for a discussion that looks at our resilience, as families and a community; the unique hardships of the increased required isolation; and an appreciation of how our families have endured the uncertainty of the future for so long. Because these are difficult days, we promise to keep it light and upbeat.
Thursday, April 16
Don Peasley: How We Can Stretch our Mind with Adaptive Yoga
Don has been practicing yoga for 12 years and teaching as a RYT200 Certified Instructor for the past two. Additionally, he recently took an intensive Adaptive Yoga certification class through YogaMoves.
Thursday, April 23
Exercise & HD
Lori Quinn and Nora Fritz: Exercise and HD
Dr. Lori Quinn is Associate Professor, Teachers College, Columbia University and Adjunct Associate Professor of Rehabilitation and Regenerative Medicine (Physical Therapy) at Columbia University Irving Medical Center. Dr. Quinn is a research physical therapist at the Columbia University HDSA Center of Excellence, and her current research focuses on evaluation of physical activity and exercise interventions in Huntington’s Disease and other neurodegenerative diseases. Dr. Quinn is co-author of the new clinical practice guidelines for physical therapy in Huntington’s Disease, along with Monica Busse, Nora Fritz, Deb Kegelmeyer, Anne Kloss and Ashwini Rao.
Dr. Nora Fritz is an Assistant Professor in the Physical Therapy Program and the Department of Neurology at Wayne State University. As the Director of the Neuroimaging and Neurorehabilitation Laboratory, Dr. Fritz’s research interests include understanding how changes in cognitive function impact motor recovery, developing clinical guidelines for exercise, and exploring exercise interventions to improve function in individuals with neurodegenerative diseases. She is particularly interested in translating evidence-based practice to the clinical setting through the process of knowledge translation.
In this session, please have a chair and two weights (1 or 2 lb) or two cans of canned vegetables for each participant.
Thursday, April 30
Mike LimBybliw: Let’s Make Some Music!
Join us for a music therapy session for caregivers and persons with HD. Guaranteed to make you smile. To participate, collect any percussion instruments you may have lying around, but they are not required to participate in the session. Any household items like kitchen pots and pans, spoons, or making instruments is encouraged, but tapping along with body percussion will also work! Check out this video on how to make your own instruments at home: https://www.youtube.com/watch?v=U2Gkf_HFrMM
Thursday, May 7
Paul Dennis Dance for Huntington’s Disease (HD)
Please join Paul Dennis for a fun time! Together, you will explore movement/dance patterns that you can do on your own – anytime you’d like! Come as you are, no experience is necessary. We’ll have fun (engaging in movements that can support coordination, circulation and muscle memory), while moving to all types of music. Come and dance with us, or feel free just to watch! With Paul, you will dance in ways that can be adapted if you are standing or seated. If seated is your preference, please have a single supported chair with armrests for safety, if needed. Nothing else is required to have fun!
In addition to being a dance instructor at UMass Amherst, the research Paul Dennis conducts blends studies in Movement Analysis with research in neuroscience to design a dance practice that may support the movement capacity of people with Huntington’s Disease.
Thursday, May 14
Arik Johnson, PsyD: Dealing with Stress in the Age of Social Distancing
Join Dr. Johnson and HDSA as we look at how we can reduce the stress we face as we go about our everyday lives in these challenging times.
Thursday, May 21
Allison Bartlett, Esq: Disability Red Flags
Join us as we learn what you need to know about the six most common red flags in a disability claim and how to mediate and avoid them.