E.J. is the grandmother of twin granddaughters who are at-risk of Huntington’s disease. The girls’ brother and her grandson, Matthew, died at age 6 from Juvenile HD in May 2008. Her son, Scott, died at age 44 from complications of HD in January 2015 as well as her former husband, Doug, also died from HD in 2002. A long-time resident of Southern California, E.J. recently moved to Olympia, WA with her husband, Art, to be close to her granddaughters and daughter-in-law.
E.J. has been active in HDSA since 2006. She served on the board of the HDSA-Orange County chapter from 2008 – 2013 and as Chapter President from 2010 – 2012. She was name HDSA-OC Volunteer of the Year in 2011 and was recognized as one of the top fundraisers of HDSA Team Hope Walk in 2013 and 2015.
After 40 years with Toyota Motor Sales, U.S.A., Inc. she recently retired from a career of various management positions including, administration, marketing, merchandising, and distribution/logistics. E.J. holds a Bachelors of Science degree from University of Redlands (CA).
In tribute to her son and grandson and in an effort to raise awareness and funds for the fight against HD, E.J. embarked on the 554 mile Camino de Santiago pilgrimage in mid-August 2015. Walking the entire route with a 23-pound backpack, she raised more than $16,000 for HDSA Team Hope Walk. Her next trek will be walking to the 21 California Missions (approximately 800 miles). She will walk to the ends of the earth to raise awareness of Huntington’s disease and to raise funds for research, education and family services.