2012

860 family members, clinicians, researchers and interested guests attended the 27th Annual HDSA Convention in Las Vegas, June 9-11.

Videos of major symposia and several workshops are available by clicking on the pages below. Powerpoint presentations from other workshops will be available in the next few weeks.

Opening Ceremony

Welcome from Jenny Rogers, Chair of Las Vegas Affiliate of HDSA; Message from HDSA by Don Barr , Chair of HDSA Board of Trustees; State of the Society by Louise Vetter, CEO

We Are HDSA
Panel of HDSA family Members : Ted Krull, Shana Martin, Ken Serbin

Saturday Morning
HDSA Research Keynote Address
Huntington’s Disease – Yes We Can!
Sarah Tabrizi, MD, FRCP, PhD
University College London

 

Clinical Research Showcase

 

Moderator: Ira Shoulson, MD

Panelists:
Bernard Landwehrmeyer, MD, PhD – ENROLL-HD
Jane Paulson, PhD – PREDICT 2.0
Steven Hersch, MD, PhD – CREST-E
Ira Shoulson, MD – Reach2HD

 

Workshops

Movement and HD HD 101: Martha Nance, MD

 

Behavior, Cognition and Movement and HD
Alternative Medicine: Kathleen Shannon, MD

 

Ethical Issues
Psychological Consequences of a Negative Test Result: Carol Manning, PhD

 

Behavior Issues Treatment Options , Pharmacologic Options: Dylan Wint, MD

 

Cognition and HD Detection of Early and Mid Stage Cognition Problems: Don Higgins, Jr., MD

 

 Please check back often. We are posting presentations everyday

TopicTitleSpeakerPresentation for Download
Behavior IssuesBehavior Management Issues in Early HDLorin Scher, MDPresentation for Download
Cognition and HDOverview of Cognitive Problems and HDJane Paulsen, PhDPresentation for Download
Movement and HDHD 101Martha Nance, MDPresentation for Download
Ethical IssuesCaring for the CaregiverAmy Chesire, LCSW-R, MSGPresentation for Download
All AttendeesEstate PlanningMetLife Center for Special Needs Planning,
Robert Westbrook,
CLU, ChFC, CFP© &
Mark Loftis,
CFP©, CLU, ChFC
Presentation for Download
Field LeadershipBoard, Volunteer and Committee DevelopmentPresentation for Download
JHDWhat Is Juvenile Onset HD?Sandra Kostyk, MD, PhDPresentation for Download
Behavior IssuesManaging Behavior
Non-Pharmacologic Approaches
Donna Munic-Miller, PhDPresentation for Download
Cognition and HDDetection of Early and Mid Stage Cognitive ProblemsDon Higgins, Jr., MDPresentation for Download
Movement and HDMedical Management of Motor SymptomsVictor Sung, MDPresentation for Download
All AttendeesHow to Start an HDSA Support GroupSeth Meyer, LMSWPresentation for Download
HDSA Field LeadershipStart a Team Hope Walk in Your CommunityPresentation for Download
JHDJHD Natural HistoryJane Paulsen, PhDPresentation for Download
Behavior IssuesTreatment Options
Pharmacologic Options
Dylan Wint, MDPresentation for Download
Movement and HDNutrition AssistanceZhaoping Li, MDPresentation for Download
Ethical IssuesPsychological Issues of Testing Positive for HDKim Quaid, PhDPresentation for Download
All AttendeesAdvocacy Meet and Greet Peggy Tighe, JD,
Jason Gromley, Esq.
and Jane Kogan, LMSW
Presentation for Download
Youth, Teens and Young AdultsThe Genetic Testing Process UnraveledKatie Plunkett, MSPresentation for Download
HDSA Field LeadershipCreate a New Fundraising Event in Your CommunityPresentation for Download
JHDMultidisciplinary Approach to Treatment and CareMartha Nance, MDPresentation for Download
HDSA RESEARCHHuntington’s disease – Yes We Can!Sarah Tabrizi, MD, FRCP, PhDPresentation for Download
HDSA RESEARCHCLINICAL RESEARCH SHOWCASEModerator: Ira Shoulson, MD
Panelists: Bernhard Landwehrmeyer, MD, PhD – ENROLL-HD
Jane Paulsen, PhD – PREDICT 2.0 Steven Hersch, MD, PhD – Crest-E
Ira Shoulson, MD – Reach2HD
Presentation for Download
Behavior, Cognition and Movement and HDAlternative MedicineKathleen Shannon, MDPresentation for Download
Ethical IssuesFamily PlanningKatie Plunkett, MS and Cheryl Erwin, JDPresentation for Download
Youth, Teens and Young AdultsHow Youth and Young Adults Can Make a DifferenceBJ ViauPresentation for Download
Juvenile Onset HDSpecial Needs PlanningMetLife Center for Special Needs Planning
Robert J. Westbrook, CLU, ChFC, CFP® and Donna M. Stefans Esq
Presentation for Download
HDSA RESEARCHPotential New TherapiesModerator: Jang-Ho Cha, MD, PhD
Panelists: Beth Hoffman, PhD – Vertex
Adriana Prundean, MD – Raptor
Holly Kordasiewicz, PhD – Isis
Presentation for Download
HDSA Field LeadershipHDSA Clinical Trials Diplomat TrainingSam Frank, MDPresentation for Download
Behavior, Cognition and Movement and HDHow to Communicate with Your Healthcare ProviderModerator; Donna Munic-Miller, PhD
Panel: Victor Sung, MD and Lorin Scher, MD
Presentation for Download
Ethical IssuesPsychological Consequences of a Negative Test ResultCarol Manning, PhDPresentation for Download
All AttendeesQuestions to Ask when Looking for a Long Term Care FacilityRebecca Ferrini, MD and Anthony Lechich, MDPresentation for Download
HDSA RESEARCHMore Hope, Less Hype: Understanding HD Science NewsJeff Carroll, PhD and Ed Wild, PhDPresentation for Download
HDSA FieldRaising AwarenessPresentation for Download
LeadershipAbout Your HDSA Events Through MediaPresentation for Download
Share Tweet

Share a link