HDSA Online Support Groups

 These support groups are free to join. There is limited space available so please register early.

To register for a group please click join now or log in if you already have an account.

Group Descriptions

HDSA Youth Support

This HDSA young adult and youth group is open to youth 18-25 years old who are affected by HD. Groups will meet monthly with a variety of leaders. Those attending will be from across the country and the membership will change regularly.

Groups will be led by HDSA Center of Excellence social workers and HDSA chapter social workers.


HDSA Caregiver Support Group

This HDSA group is open to caregivers of a loved one with HD who does not have access to an in person group because of distance, time constraints or difficulty with a loved one traveling to group or leaving a loved one alone. The group will meet monthly with a changing leader and changing members due to expanded geography.


HDSA At Risk/Not Tested

This HDSA group is for adults age 18 and up who are at risk for HD. This group will have monthly meetings with changing leaders and varied members due to their geography. Members will get support from those in similar situations as they cope with their at risk status.


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