Taking part in The Guthrie Sessions at HDSA series, BAILEN performs four songs to show their support to the HD community. In 1967, music icon Woody Guthrie died from Huntington’s disease when he was only 55 years old. That same year, his wife Marjorie founded what is now the Huntington’s Disease Society of America.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
The Huntington’s Disease Society of America (HDSA) is the premiere non-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with HD and their families.
BAILEN’s otherworldly musicality springs from a very deep well, in fact, it’s in their DNA. Raised in New York by their classically trained parents, Daniel, David and Julia immersed themselves in the family’s diverse record collection. The group’s highly collaborative songs are formed by three very different individuals who were all inspired by literature and a love of language. The resulting confident, meticulous songcraft of Thrilled To Be Here is rooted in the young group’s preternatural dexterity, insight and lyrical bite.
Detail-oriented and precise, the members of BAILEN found the perfect counterpoint in producer Congleton’s more open approach: “We think micro, and John was really good at thinking macro for the record,” Julia observes. “First records are special because you’ve spent your whole life writing them. Recording our album in a month at the same studio with one producer meant that we kept the creativity, but also found the cohesiveness.”