HDSA FAMILY GUIDE SERIES:
Caregiver’s Guide to Communicating with Healthcare Providers – Huntington’s Disease
HDSA, 2010, 18-page booklet. An introduction to working with healthcare providers and talking about Huntinton’s disease.
DOWNLOAD: Click here for a FREE PDF DOWNLOAD.
PURCHASE: You may also order bound, printed copies of this publication by simply ADDING TO CART or by calling 800-345-4372 ext 222.
$2.00
A Caregiver’s Guide to Huntington’s Disease
US Huntington’s Disease Genetic Testing Group Revised 2003, 27 Pages. Presents the current diagnostic usefulness of genetic testing for HD and discusses the results of surveys that evaluate issues related to testing individuals at risk for this disease. This publication is extremely useful not only to those working in the HD community, but to all professionals who care for patients with adult-onset genetic disorders.
DOWNLOAD: Click here for a FREE PDF DOWNLOAD.
HDSA FAMILY GUIDE SERIES:
Long-Term Care
HDSA, 2019, 35-page booklet. This guide is designed to help families facing the challenge of HD learn more about long-term care and to understand what may be involved in arranging this care for a loved one.
DOWNLOAD: Click here for a FREE PDF DOWNLOAD
PURCHASE: You may also order bound, printed copies of this publication by calling 800-345-4372 ext 222.
$2.00
Caregiver Guide for Mid to Late Stage Huntington’s Disease:
For Long-Term Care Facilities and In-Home Care Agencies
2014, 116 pages. This guide will provide caregivers with the information and resources that they need to provide the best care to persons with HD — to work through the difficult symptoms to reach the person behind the disease, and to allow the person to function as well as possible each step of the way. The goal of care for the person with Huntington’s disease is to promote independence, freedom of choice, and ability to function within the confines of safety for the person, the family, and the care team.
DOWNLOAD: Click here for a FREE PDF DOWNLOAD.
SPECIAL OFFER: Thanks to a generous educational grant, HDSA is able to offer free printed copies of this guide to professionals involved with long-term care facilities and in-home care agencies.
Click here to fill the form and get a printed copy of this guide.
A Caregiver Guide for HD Families
The Caregiver Guide for HD Families includes discussion on the benefits of physical and occupational therapy and nutrition along the continuum of disease progression but also offers practical suggestions for unique home caregiving issues such as driving, the role of young adults as caregivers and managing JHD at home.
To download the electronic copy please click here
