We’re on a mission to connect with as many families affected by Huntington’s disease as possible. By joining us, you’ll help speed up research with meaningful patient data.
This collaborative effort aims to engage the Huntington’s disease community by making research participation easier and improving the understanding symptoms of HD. Together, we can advance the development of innovative treatments for Huntington’s disease.
HOW TO JOIN:VISIT rare-x.org/huntingtonsdisease or scan the QR code to enroll and create an account.
COMPLETE the consent materials and invite a research partner of your choosing. This will take about about 30 minutes. Don’t forget to fill out your first survey after consenting!
KEEP AN EYE ON YOUR EMAIL! You’ll receive periodic invitations to participate in surveys based on your eligibility.
JOIN TODAY!
