TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA
New York, NY | November 13, 2023 – Twenty-three runners from 13 states participated in the TCS New York City Marathon on Sunday, November 5, 2023, to support the Huntington’s Disease Society of America (HDSA). More than $126,000 has been raised so far – donation pages will remain open until December 31, 2023.
“Team HDSA’s run in the NYC Marathon is proof that we all have our part to play in our fight to care for families and cure Huntington’s disease,” said Louise Vetter, President & CEO of HDSA. “Every step along the 26.2 mile route helped raise awareness and impressive resources to improve the lives of everyone with HD and their families. We are so proud of and grateful for them all.”
Samuel Stevens recorded the team’s fastest finish completing the 26.2-mile marathon in an impressive 2 hours and 55 minutes. Thank you EisnerAmper LLP for serving as this year’s Jersey Sponsor.
Thank you Team HDSA: Adam Almonte (FL), Luke Bader (Washington, DC), Douglas Boyle (NY), Natalie Click (IL), Samantha Cox (IL), Caroline Cudahy (NY), Kaela Davidson (TN), Kyle Dineen (NY), Larisa Drake (IL), Ezekiel Farmer (KY), Maxwell Ford-Weber (NY), Dietrich Haubenberger (CA), Robert Leaks III (NJ), Brendan McCann (NY), Mariah Morter (FL), Rebecca Paquette (MA), Nicholas Perry (NY), Andrew Rico (AZ), Jaylen Sheldon (LA), Samuel Stevens (CO), Elizabeth Wagner (MA), Colleen Wenckens (TX) and Nathaniel Yoon (NJ).
To support Team HDSA, please visit www.HDSA.org/nycmarathon.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes HD. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at risk of inheriting the disease. The symptoms of HD are described as having, ALS, Parkinson’s and Alzheimer’s – simultaneously.
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The Huntington’s Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with HD and their families. To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.HDSA.org or call (800) 345-HDSA.
MEDIA CONTACT
Mynelly Perez
Director of Marketing & Communications
(212)242-1968 x214
mperez@HDSA.org
