FOR IMMEDIATE RELEASE
Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower
This May, Celebrate and Raise Awareness with HDSA
New York, NY (May 1, 2025) – The Huntington’s Disease Society of America (HDSA) is proud to mark 33 years of Huntington’s Disease (HD) Awareness Month, a nationwide initiative dedicated to educating the public and empowering families impacted by this devastating hereditary neurodegenerative disease. Throughout the month of May, HDSA will lead a series of educational programs, fundraising events, and community gatherings designed to raise awareness and offer support to those affected by HD.
This May, HDSA invites you to join and turn up the volume on HD by participating in one of the many HDSA events happening across the country. Every walk, fundraiser, and awareness event helps not only spread the word about HD but also raises vital funds to support HDSA’s mission programs, including research, advocacy, and family services.
HDSA is also launching its social media campaign, #LetsTalkAboutHD, creating a powerful digital platform for people to share their HD stories and build a sense of community and solidarity. Follow HDSA on social media to see regular video content released throughout the month, and share your voice using the hashtag #LetsTalkAboutHD.
HD Awareness Month traces its roots to May 1992, when President George H. W. Bush issued a proclamation recognizing the significance of this cause. His statement urged the nation to learn about HD and show compassion for those affected by it—a message that continues to resonate 33 years later.
For more information about Huntington’s Disease Awareness Month, the #LetsTalkAboutHD campaign, and how you can get involved, visit http://www.hdsa.org and follow HDSA on social media.
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About Huntington’s Disease
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and currently has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, approximately 41,000 Americans show symptoms of HD, with more than 200,000 at risk.
About HDSA
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow. HDSA was founded in 1967 by Marjorie Guthrie, wife of folk legend Woody Guthrie, who lost his life to HD complications at age 55.
Contact:
Weston Greene
Communications Associate
(212) 242-1968 ext. 216
wgreene@hdsa.org
