Resources for Social Workers

Helpful Resources by Category

Below are additional resources with insights to some of the most challenging topics that social workers face when assisting individuals and familes affected by HD. Whether you’ve been a social worker for a few months or many years, we encourage you to check out one or more of these helpful materials.

Cognitive

• Understanding Behavior in Huntington’s Disease: A Guide for Professionals – (PDF) 68 pages

Disability

• Social Security Disability Starter Kit (PDF) 208 Pages

General HD

• A Physician’s Guide to the Management of Huntington’s Disease (Third Edition) – (PDF) 140 pages

Genetic Testing & Guidelines

• Genetic Testing Protocol for Huntington’s Disease – (PDF) 20 pages

Homecare/Equipment

• A Caregiver Guide for HD Families – (PDF) 124 pages

Long Term Care

• Caregiver Guide for Mid to Late Stage Huntington’s Disease: For Long-Term Care Facilities and In-Home Care Agencies – (PDF) 116 pages

Support Group Leader Training

• Support Group Leader Training: Managing Multiple Conversations – (video) 14 min
• Support Group Leader Training: Speaking Negatively about Spouse/Partner – (video) 11 min
• Support Group Leader Training: Confidentiality – (video) 19 min
• Support Group Leader Training: Managing the Conversation Monopolizer/Over Talker – (video) 11 min
• Support Group Leader Training: The Delusional Spouse – (video) 14 min
• Support Group Leader Training: Handling Silence – (video) 11 min

Talking To Kids

• HDSA Family Guide Series: Talking With Kids — Huntington’s Disease – (PDF) 28 pages
• Talking With Kids About HD – (PDF) 112 pages