HDSA Disability Program

As 2024 comes to a close, we want to thank everyone who has reached out and utilized HDSA’s disability program. This is truly a unique program that has been designed to help anyone impacted by HD, including families, social workers, medical professionals, lawyers, and advocates. HDSA Disability program offers assistance in multiple areas: 

We also want to remind everyone about the amazing, FREE disability resources that HDSA offers: 

Webinars – All Webinars can be found on HDSA’s Youtube Channel.
  • Public and Private Disability Benefits 
  • Work Credits and How to Qualify for Disability 
  • How Social Security Evaluates a Disability Claim and What Evidence You Need  
  • Preparing to File a Disability Application and Collecting Medical Records 
  • Debunking Disability Myths 
  • Disability Red Flags 
  • Completing Disability Forms 
  • Prodromal and Pre-Symptomatic HD Disability Planning 
  • Early to Mid-Stage HD Disability Planning 
  • Late-Stage HD Disability Planning 
  • Completing the Online SSA Application  
  • Completing the Online SSA Appeal 
  • Following up with Social Security 
  • Navigating Health Insurance 
  • VA Benefits and Social Security 
  • How to Advocate for Yourself 
  • JHD and Social Security 
  • Disability Planning and JHD 
  • Navigating the Social Security Appeal Process 
  • Financial Planning 
  • Laying the Groundwork for Disability 
  • Legal Planning and HD: Estate Planning
  • Legal Planning and HD: Healthcare Decision Making  
Worksheets, guides, and infographics 

Contact Us 

If you have questions, you can always Ask Allison!  

Allison has worked directly with more than 700 families this year to answer questions, offer support, create personalized action plans, and help families navigate the complex disability process. She is always happy to help.