Summary
- HDSA Names 57 Centers of Excellence and 11 Partner Sites in 2024
- What’s the Buzz on CRISPR? HD Scientists report
- HDF Research Webinar: Using CRISPR for Huntington’s Disease Drug Development
HDSA Names 57 Centers of Excellence and 11 Partner Sites in 2024
This week, HDSA announced its Centers of Excellence network will grow in 2024! HDSA named one new Center of Excellence for a total of 57 HDSA COEs and 11 regional partner sites. These grants total $2,100,557 of support for expert HD care at 67 distinct medical facilities in 37 states across the nation and Washington, DC.
Professionals at these locations include neurologists, psychiatrists, social workers, therapists, and counselors with extensive HD experience who work together to provide care and support for HD families. Because HDSA is highly committed to supporting clinical research, HDSA Centers of Excellence are not only important for delivering specialty medical care to HD families, but also key for connecting families with opportunities to participate in HD research. We’re excited to continue the expansion of expert HD research and care nationwide with the growth of this network. To read the latest press release announcing this news, click here.
What’s the Buzz on CRISPR? HD Scientists report
CRISPR has been making headlines since its discovery in 2012 and has recently been brought to the forefront of global scientific news with a new treatment for Sickle Cell Disease. This major victory for science and the Sickle Cell community begs the question, how far are we from CRISPR treatments for other genetic disorders, like Huntington’s disease? In their most recent article, the HDBuzz team gives us a high-level run down of what CRISPR is, how this new Sickle Cell drug works, the complexities of producing, administering, and accessing CRISPR-based drugs, and where we stand in the development of CRISPR-based therapies for HD. To read the full article, click here.
HDF Research Webinar: Using CRISPR for Huntington’s Disease Drug Development
Join the Hereditary Disease Foundation next week on Thursday, February 22nd at 12 PM ET for a research webinar exploring applications of CRISPR for HD drug development. This webinar will feature 2016 HDSA Berman-Topper Family HD Career Development fellow, Dr. Ricardo Mouro-Pinto, and will be followed by an opportunity for attendees to ask questions. Register to join here.
