Dear Friends,

Care. Cure. Community. These three simple words represent everything that inspires the Huntington’s Disease Society of America and describes our mission work.

In 2022 the HDSA Board launched a new Strategic Plan defined by these ‘three C’s’ and infused with the urgency and clarity of HD families. HDSA exists to ensure that everyone impacted by HD has access to the highest quality of care, to accelerate the development of treatments (cures) for HD, and to support and empower the HD family (community). Families are HDSA’s ‘why’ and these goals are the ‘how’ for achieving our mission to improve the lives of people with Huntington’s disease.

This year’s Annual Report recognizes our discipline and impact in the areas of Care, Cure and Community. From our cornerstone programs like the HDSA Centers of Excellence and the Annual HDSA Convention to our diverse research grant portfolio and community awareness campaigns, HDSA’s mission work continued to expand and evolve in 2022, so that we can do more for more families.

For the first time ever, the HDSA Annual Report is truly a multi-media experience! In addition to the photos and information that showcase the accomplishments of the HDSA community, we invite you to click on the linked videos on the pages to hear personal stories from families, clinicians and scientists whose lives have been changed by HDSA. Each of the individuals featured in these vignettes is a hero, helping to keep the HD community strong and bring our mission to life. We are so grateful.

HDSA exists because of the thousands of volunteers, donors and partners who continue to follow Marjorie Guthrie’s call to action: to “do something” about HD. Every day they give their time and talent and their generous donations fund everything we do. In HDSA Chapters and Affiliates, at HD Clinics, in laboratories, and through networks of community services with our social workers and support groups, the HD families are helping to bring more Care forward, find the Cure and support our HD Community.

We challenge you to let the people in your HD community know how grateful you are for their service, by sending a note to info@hdsa.org or posting a message on social media. At HDSA, family is everything, and we look forward to sharing your notes of gratitude.

As we head into the heart of 2023, HDSA is working to launch new programs, services, research projects and community events to increase our ability to provide help and cultivate hope. Check out HDSA.org and follow us online to stay up to date, and we hope to see you at an HDSA event soon!

Thank you for your continued partnership in the fight against HD.