President & Chief Executive Officer

Louise Vetter President & Chief Executive Officer ext. 220
President & Chief Executive Officer

Louise Vetter is the President and Chief Executive Officer of the Huntington’s Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington’s disease (HD). Since joining HDSA in 2009, she has led the expansion of the Society’s reach with new programs and initiatives to strengthen the web of support for the HD community, advocate for better access to care for those affected by the disease, improve physician understanding of HD, and support scientific exploration to bring new treatments to HD families. Ms. Vetter serves as Secretary of the International Huntington’s Association and is Treasurer of the Board of Directors of the American Brain Coalition. Additionally, she is an active member of the National Health Council and an editorial advisor to the Rare Disease Report. Before coming to HDSA, Ms. Vetter spent nearly 10 years leading the American Lung Association of New York where she advocated for families living with lung diseases, like lung cancer, asthma, cystic fibrosis, emphysema and more, to get the care and support they needed. Earlier in her career, she led national health education and public relations campaigns for Fleishman Hillard International Communications with emphasis on improving the patient-physician dialogue. At the heart of her experience is a firm passion for helping people face health challenges head on, always with dignity, understanding and hope.

Mission Team

Arik Johnson, PsyD Chief Mission Officer ext. 234
Debra Lovecky Director, Educational Programs ext. 228
Jennifer Simpson, LCSW Assistant Director, Youth & Community Services ext. 226/240
Leora Fox, PhD Assistant Director, Research & Patient Engagement ext. 219
Allison Bartlett, Esq. Senior Manager, Disability Programs ext. 218
MaryAnn Emerick, MSW Manager, Youth & Community Services ext. 252
Kelly Andrew Coordinator, Research & Mission Programs ext. 238

Marketing & Communications

Christopher Cosentino Director, Marketing & Communications ext. 229
Mynelly Perez Assistant Director, Communications & Event Marketing ext. 214
Matthew Santamaria Communications Manager ext. 204

National Development

Jamison Skala Director, Development ext. 235
Emilie Vocaj Wan Assistant Director, Corporate & Foundation Development ext. 211
Deb Boyd Associate Director, Regional & Chapter Development 269-629-5452
Jenna Caroccia Assistant Director, Individual Giving ext. 232
Robert Coffey Senior Manager, Development & Meeting Planning ext. 210
Neekia Davis Manager, Regional & Chapter Development ext. 233
Virginia Goolkasian Regional Development Officer - Northeast Region 978-905-5588
Melinda Jensen Regional Development Officer- Northeast Region ext. 236
Michal Biletzki Regional Development Officer - South Region 727-221-4826
Melissa Wind Regional Development Officer - South Region 605-799-5812
Camille Colletti Regional Development Officer - Upper Great Lakes Region 847-849-0680
Peggy Cribbin Regional Development Officer - Upper Great Lakes Region 314-293-4359
Christine Greve Regional Development Offficer- Pacific Region 760-566-9622
Nichole Mendoza Regional Development Officer- Pacific Region 707-416-6002

Finance & Operations

Rosemary Coluccio Chief Operating Officer ext. 212
Rebecca Chan Controller ext. 224
Rema Kabani Senior Manager, Volunteer Engagement ext. 244
Tenzing Andrugsurba Donor Database & Accounting Clerk ext. 237
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