President & Chief Executive Officer

Louise VetterPresident & Chief Executive Officer ext. 220
President & Chief Executive Officer

Louise Vetter is the President and Chief Executive Officer of the Huntington’s Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington’s disease (HD). Since joining HDSA in 2009, she has led the expansion of the Society’s reach with new programs and initiatives to strengthen the web of support for the HD community, advocate for better access to care for those affected by the disease, improve physician understanding of HD, and support scientific exploration to bring new treatments to HD families. Ms. Vetter serves as Secretary of the International Huntington’s Association and is Treasurer of the Board of Directors of the American Brain Coalition. Additionally, she is an active member of the National Health Council and an editorial advisor to the Rare Disease Report. Before coming to HDSA, Ms. Vetter spent nearly 10 years leading the American Lung Association of New York where she advocated for families living with lung diseases, like lung cancer, asthma, cystic fibrosis, emphysema and more, to get the care and support they needed. Earlier in her career, she led national health education and public relations campaigns for Fleishman Hillard International Communications with emphasis on improving the patient-physician dialogue. At the heart of her experience is a firm passion for helping people face health challenges head on, always with dignity, understanding and hope.

Mission Team

George Yohrling, PhDSenior Director, Mission & Scientific Affairs ext. 211
Debra Lovecky Director, Educational Programs ext. 228
Anne Leserman, LCSW Assistant Director, Community Services ext. 240
Jennifer Simpson, LCSW Senior Manager, Advocacy & Youth Programs ext. 226
Leora Fox, PhD Manager, Research & Mission Programs ext. 219

Marketing & Communications

Christopher CosentinoDirector, Marketing & Communications ext. 229
Mynelly PerezAssistant Director, Communications & Event Marketing ext. 214
Matthew SantamariaCommunications Coordinator ext. 204

National Development

Jamison SkalaDirector, National Development ext. 235
Jenna CarocciaAssistant Director, Individual Giving ext. 232
Natalie Carpenter Assistant Director, Donor Services West (949) 542-3907
Robert CoffeySenior Manager, Development & Meeting Planning ext. 210

Field Development & Operations

Nancy RhodesDirector, Field Development ext. 234
Neekia DavisField Manager ext. 233
Christopher Proscia Field Coordinator ext. 237

Finance & Operations

Rosemary ColuccioChief Operating Officer ext. 212
Rebecca ChanController ext. 224
Burnesteen DavisDonor Database Manager & Accounting Associate ext. 215
Lisa JenkinsOffice Coordinator ext. 222
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