Manager of Volunteer Development

Title:                           Manager of Volunteer Development

Reports to:                Chief Operating Officer

Position Description: The Manager of Volunteer Development is a new role at HDSA designed to develop and implement a comprehensive strategy for volunteer engagement that furthers HDSA mission and values. Our 500+ volunteers are essential to HDSA’s success.  As the key liaison between the Chief Operating Officer (COO), Chapter & Affiliate Advisory Committee (CAC) and nationally-based Chapter & Affiliate volunteers, the Manager will leverage the skills of staff and volunteers to achieve operational efficiency and to have a greater impact on the lives of HD families.  The strategy will support our volunteer leaders through training, resource development and governance while stressing diversity, collaboration and connection.

This position is based in NYC and is a full-time exempt position. Successful candidates are already doing this work developing and engaging volunteer leaders within a non-profit environment and are looking to bring those skills and expertise to HDSA.

Position Requirements:

  • Build and implement an engagement model that helps Chapters & Affiliates to increase volunteer participation through recruitment, support and retention strategies.
  • Develop existing volunteers in their current roles to enable them to consider future leadership positions.
  • Design and provide materials to promote volunteer engagement.
  • Collaborate with all programs to set up monthly webinars on a wide array of topics critical to volunteer development.
  • Evaluate and improve staff and volunteer relations, volunteer policies, programs and practices.
  • Develop standard tools and manage current resources for volunteers located on the intranet, HDSA Connect.
  • Plan and manage effective volunteer recognition programs.
  • Collaborate with staff & the Chapter & Affiliate Advisory Committee on leadership transitions. Elevate issues to the COO, as needed.
  • Support and co-produce Leadership Day at the annual HDSA Convention.
  • Staff the Chapter & Affiliate Advisory Committee.
  • Manage & maintain the database of Chapter, Affiliate & volunteer information.
  • Ensure volunteer compliance with HDSA legal and governance requirements.
  • Provide information used to file annual state registration submissions.
  • Attend meetings, including on some evenings and weekends.

Qualifications:

The successful candidate will meet the following qualifications:

  • Passion for Society’s mission and demonstrated commitment to the non-profit sector.
  • Degree from accredited college or university. Bachelor’s preferred.
  • Minimum 5 years’ experience working with volunteers in a non-profit environment.
  • Professional ethics, discretion, and courtesy in dealing with others.
  • Proven ability to train and motivate volunteers and fellow team members to provide the best in quality programming.
  • Self-motivated team player with the ability to work creatively, efficiently and effectively as an independently and as a member of a team.
  • Excellent written, communication, organizational and interpersonal skills.
  • Strong attention to detail.
  • Ability to multi-task, prioritize, delegate, and make timely decisions with sound judgment in order to meet event deadlines.
  • Proficient knowledge of Microsoft Office Suite, CRMs, and social media platforms.

At HDSA, we are on a mission to support families affected by Huntington’s disease and rid the world of this devastating brain disorder. In order for us to continue our crusade against HD, we seek HONEST, COMMITTED and RESPECTFUL staff members that put HD FAMILIES FIRST and are ready to COLLABORATE with this dynamic team. In the battle against HD, no one fights alone. At HDSA, Family Is Everything!

We have an exciting 5-year strategic plan to kick-off.  Join the #HDSAFamily to give meaning to your career and let your skills, personality and vision make a big difference in the lives of HD families.

Please send cover letter, resume/CV, and salary requirements to rcoluccio@hdsa.org. Use subject MVD.

We offer a competitive salary and benefits, as well as a terrific team with which to work! HDSA is an equal opportunity employer.

Regional Development Officer - Pacific/West Region

Title:                 Regional Development Officer – Pacific/West Region

Reports to:         Director of Development

Position Description:

The Regional Development Officer – Pacific/West Region (RDO) will grow financial and volunteer resources to advance HDSA’s mission throughout the Pacific/West Region (WA, MT, OR, ID, WY, CA, NV, UT, CO, AZ, and NM).  This is a fundraising-focused position with primary responsibilities including creating, executing and achieving budgeted goals for special events and associated activities throughout the region.  Key activities include cultivating individual participation, securing event sponsorships, obtaining corporate and foundation grants, and expanding our ability to support families affected by this rare disease in the Pacific/West Region.   Additionally, the Regional Development Officer supports the volunteer development of Chapters and Affiliates throughout the region to ensure sustainable Boards and Committees, succession planning, and diversified program and event activities.

This is a full-time, exempt, remote position that can be based anywhere within the Pacific/West Region.  The RDO reports to the Director of Development, works closely with the Associate Director of Regional & Chapter Development, and – along with one other Regional Development Officers in the region – plays a key role in executing the goals of the Pacific/West Region.

Position Responsibilities:

  • Develop and execute a multi-year plan for fund development, including expansion into new markets.
  • Build and maintain effective relationships with volunteer leadership to ensure the strength and sustainability of Chapters and Affiliates, achievement of fundraising goals, and mission work.
  • Secure financial support through direct fundraising outreach to individuals, foundations and corporations.
  • Recruit, retain and motivate volunteers, with special emphasis on volunteer leadership of Chapters and Affiliates.
  • Foster working relationships with schools/clubs/civic organizations/corporations to complement special event fundraising activities.
  • Develop a grant-funding strategy to actively pursue community-based funding opportunities with volunteers.
  • Utilize our event management platform to promote events through targeted emails, event metrics, and social media integration.
  • Help update Regional, Chapter and Affiliate websites and social media networks to promote event support.
  • Ensure all donor and volunteer information is maintained in the donor database and that all monetary donations, including in-kind donations, are tracked and acknowledged in a timely manner.
  • Work in partnership with social workers, support groups, and related medical facilities to ensure family and patient needs are being met in a manner consistent with our mission.
  • Support and maintain a working knowledge of organizational mission initiatives, including advocacy, community services, and education, research and awareness activities.
  • Assist Chapters and Affiliates with the preparation of annual budgets and income projections to support mission activities in their communities and regularly review revenue and expenses, progress to goals, and the status of pledges and gifts.
  • Stay aware and informed of the status of the HD drug development pipeline, HDSA-funded research, and HDSA mission programs and services.
  • Maintain collaborative team relationships with peers and colleagues in order to effectively contribute to the society’s achievement of goals, and help foster a positive work environment.
  • Consistently apply the society’s organizational values of HD Families First, Honesty & Integrity Always, Respect, and Collaboration in everything we do.
  • Develop a personal commitment and understanding of Huntington’s disease and those who have it, and be able to articulate the programs of HDSA that need support.

Qualifications:

  • Minimum five years of experience in a nonprofit development setting.
  • Professional success leading special event fundraisers, such as walks or galas.
  • Demonstrated ability to coordinate a large, geographically diverse volunteer team.
  • Ability to manage, direct and inspire colleagues, sponsors, and volunteers.
  • Excellent communication, organization, and presentation skills.
  • Superb interpersonal skills to achieve consensus and cooperation.
  • Ability to successfully handle multiple projects at once and meet deadlines with flexibility and good humor.
  • Proficient knowledge of Microsoft Office Suite, Donor databases, and peer to peer event platforms a must.
  • Ability and willingness to travel (approximately 30 percent).
  • Bachelor’s degree from accredited four-year college or university.

At HDSA, we are on a mission to support families affected by Huntington’s disease and rid the world of this devastating brain disorder. In order for us to continue our crusade against HD, we seek HONEST, COMMITTED and RESPECTFUL staff members that put HD FAMILIES FIRST and are ready to COLLABORATE with this dynamic team. In the battle against HD, no one fights alone. At HDSA, Family Is Everything!

We are launching an exciting 5-year strategic plan. Join the #HDSAFamily to give meaning to your career and let your skills, personality and vision make a big difference in the lives of HD families.

We offer a competitive salary and benefits, as well as a terrific team with which to work!  HDSA is an equal opportunity employer.

Please send cover letter, resume/CV, and salary requirements to jskala@hdsa.org. Use subject RDOPWR.

We offer a competitive salary and benefits, as well as a terrific team with which to work! HDSA is an equal opportunity employer.

 

Assistant Director, Corporate & Foundation Development
Title: Assistant Director, Corporate & Foundation Development

Reports to: Director of Development

Position Description
The Assistant Director, Corporate & Foundation Development is the lead team member responsible for securing corporate and foundation funding that advances HDSA’s mission and reflects the Society’s priorities and needs. As the main steward of corporate/foundation relationships, the position interacts with a full range of corporate and foundation relations responsibilities including: identifying and researching prospects, cultivating prospects, writing proposals, solicitation/submission, tracking and stewarding proposals, and the stewardship of foundation and corporate funders. This Assistant Director, Corporate & Foundation Development will be responsible for raising $2 million in 2022 from existing and new organizational relationships.

This is a fulltime, exempt position based in our New York City headquarters. The Assistant Director, Corporate & Foundation Development reports to the Director of Development, at times works closely with the Chief Mission Officer and Chief Executive Officer, and plays a key role in executing the goals of the corporate & foundation development components of the development program.


Position Responsibilities

-Successfully manage a portfolio of current and prospective corporate/foundation donors at various levels of support and stages of development.

-Research and identify a range of grant opportunities and work to create a robust pipeline to support the Society’s short and longterm fundraising objectives.

-Develop proposal concepts by identifying and clarifying opportunities and needs, and studying requests for proposals (RFPs) that align with the mission of HDSA.

-Prepare strategies and briefings for meetings with foundation and corporate partners.

-Compose grant proposals based on the Society’s priorities/mission or other funding opportunities such as: Annual Convention, Team Hope, Celebration of Hope, FreezeHD, Community & Social
-Support Programs, HDSA Research Programs.

-Adhere to timelines for information gathering, writing, review, approval, and transmittal. Track all submitted grants, prospective funder grants, and donor/prospect communications in DonorView (HDSA’s database).

-Cultivate and steward relationships with existing and potential funders, demonstrating sensitivity in handling confidential information.

-Expand the corporate and foundation base to support the strategic planning goal of yearoveryear fundraising growth in 2023 and beyond. Ensure compliance with HDSA policies and procedures and external (donor/IRS/legal/watchdog) requirements are implemented and modeled.

-Assist the Director of Development with the preparation of annual budgets and income projections for the corporate and foundation budget lines and regularly review revenue and expenses, progress to goals, and the status of pledges and gifts.
-Stay aware and informed of the status of the HD drug development pipeline, HDSAfunded research, and HDSA mission programs and services.

-Maintain collaborative team relationships with peers and colleagues in order to effectively contribute to the society’s achievement of goals, and help foster a positive work environment.

-Consistently apply the society’s organizational values of HD Families First, Honesty & Integrity Always, Respect, and Collaboration in everything we do.

-Develop a personal commitment and understanding of Huntington’s disease and those who have it, and be able to articulate the programs of HDSA that need support.

Qualifications

Bachelor’s degree and minimum four to six years nonprofit or other related experience, or the equivalent combination of education and experience, required.
-Grantmaking experience in the healthcare/pharmaceutical/biotech industries preferred.

-Excellent written, presentation and communication skills with the ability to deal with sensitive issues, both directly and passionately, to garner support for HDSA’s mission.

-Must possess a high level of independence to prioritize, meet deadlines and accomplish the responsibilities of the position.
-Experience building and maintaining relationships with fundraising constituents.

-Strong computer skills (Microsoft Office, DonorView or other fundraising database).

-Willingness to travel (25%) to cultivate and steward HDSA organizational relationships

Please send cover letter, resume/CV, and salary requirements to jskala@hdsa.org. Use subject ADCFD.

We offer a competitive salary and benefits, as well as a terrific team with which to work! HDSA is an equal opportunity employer.

 
Donor Database & Accounting Clerk
Title: Donor Database & Accounting Clerk
Reports to: Controller
Location: NYC office-based (COVID measures in place)
Status: Full-time, non-exempt

Position Description

This is an entry-level role within the Operations Team and is responsible for providing critical support to the Accounting & Fundraising teams. To be successful, you will have excellent computer skills; familiarity and comfort working with databases; the ability to learn programs and processes quickly; diligence; and, you will value being a member of a highly functioning team.


Position Responsibilities:

Database Management (50%)

Enter daily mail deposit batches into HDSA’s CRM, DonorView.

Record donations made through 3rd party sites such as Square, etc. Review for coding accuracy.

Capture returned checks and refunds.

Monitor and track all information entered into Donor View to ensure the accuracy of donor records.

Run reports as needed.

Be seen as an internal DonorView super-user, able to train and provide technical support to other staff and volunteers, as needed.

Establish and maintain policies for entering data into DonorView, driving standards of excellence in data management.

Process donor acknowledgement letters and memorial tribute cards in accordance with HDSA policies.

Accounting Support (45%)
Accounts Receivables

Process incoming daily mail with the Controller.

Scan checks and prepare batches for deposit & data entry preparation.

Enter deposits into HDSA’s General Ledger System (MIP).

Take Deposits/Payments to the bank, as needed.

Monthly filing.

Accounts Payables
Enter team invoices into MIP/Microix in a timely manner to ensure all bills and reimbursements are paid on time.

Prepared checks to be mailed. File supporting backup.

Ensure W9 forms are collected for all independent contractors and new vendors.

General Accounting
Enter Chapter transactions into MIP on a monthly basis.

Assist the Controller with monthly reconciliations between MIP and DonorView.

Assist the Controller with annual 1099s. Update addresses and social security numbers for old and new vendors.

• Print and mail out all 1099s.
Provide support for annual audit.

Administrative & Operations Support (5%)
Support the COO in managing office supplies, the postage meter, contracted vendors and other office administrative areas.

Qualifications
The successful candidate will meet the following qualifications:

Associate’s Degree or equivalent experience.

2+ years’ experience of work experience in a bookkeeping or data entry position.

Strong work ethic, attention to detail, and team player. Values positive working relationships with colleagues and volunteers.

Exceptional commitment to customer service and ability to multitask effectively with frequent interruptions.

Working knowledge of electronic general ledger systems and databases a plus. Candidates with experience using Abila MIP, DonorView or any e-requisition program will be prioritized.

High proficiency in Microsoft Office Suite and related programs.

Be an active team member by demonstrating a willingness to jump in when needed.

Passion for Society’s mission and commitment to the non-profit sector.

Please send cover letter, resume/CV, and salary requirements to rcoluccio@hdsa.org. Use subject DDAC.

We offer a competitive salary and benefits, as well as a terrific team with which to work! HDSA is an equal opportunity employer.


 
Tennessee Chapter Social Worker

Job details

Job Type: Part-time Contract

Number of hires for this role: 1

Qualifications

    • Master’s (Required)
    • LMSW/Social Work License (Required)

Full Job Description

Job Description: The function of a Chapter HDSA Social Worker is to assist individuals and families affected by Huntington’s disease and related health care professionals by providing an optimum level of support through supportive and psychoeducational counseling, information and referrals to appropriate resources throughout the state of Tennessee. HDSA social workers provide referrals to community services, help to create community awareness about HD, promote advocacy and encourage research participation. Case management is not the primary function of the Chapter Social Worker, some case management services may be needed on a case-by-case basis. The social worker should be familiar with crisis services available in the community for callers needing crisis mental health or medical services.

Current Hours: 44/month

Responsibilities:

The position will include responding in a timely manner to helpline calls, emails, leading a local support group and monitoring regional support groups, assisting the chapter with educational events and quarterly fund raising events. The social worker will create and maintain a resource guide to answer questions on relevant issues important to the community. The social worker will interact with regional professionals (home health agencies, long-term care facilities, MDs and clinics, law enforcement) to educate and inform so that new avenues for services are made available to families. These resources are shared with the national office quarterly in order to ensure wide distribution of resources.

An HDSA Chapter Social Worker will work on the following core competencies to improve their knowledge of HD to assist in their practice in their first 6 months of hire. The Assistant Director of Youth & Community Services will help new social workers have access to this information.

  • What is HD? Be able to discuss neurodegenerative disorders, CAG repeat, triad of symptoms and JHD
  • Understanding the need for multidisciplinary evaluations and the role of the following professionals that might include neurologist, movement disorder neurologist, psychiatrist, psychologist, and neuropsychologist. The list can also include speech- language pathologist, occupational therapist, physical therapist, and nutritionist.
  • Medications for psychiatric and movement symptoms.
  • Genetic testing guidelines- GINA, basic genetics
  • Advanced medical directives- conservatorship/guardianship, special needs trust, hospice/palliative care, durable power of attorney, medical power of attorney
  • State and federal insurances- long term care insurance, state Medicaid guidelines and waivers, Medicare, SSDI/SSI
  • Research- Phase1-4 trials, observational vs medicine trials, how to access trial information, where to get current research information
  • Family dynamics- unique family dynamics occur with an inherited disease
  • Long term care- facilities with HD units or facilities that have accepted HD persons in the past.

Social workers will be provided with a phone number with voicemail and texting capabilities through Zoom to act as their work phone. Social workers will be expected to utilize this service on their own devices through their mobile phone carrier provider.

License and continuing education:

Social workers are expected to maintain state licensing requirements and may participate in relevant HDSA webinars no more than 10% of hours worked monthly. It is critical to keep abreast of relevant HD updates through HDSA and other entities. Social workers will be paid for this time by the Region.

Social workers are required, and are supported by the Regional budget, to attend the annual Professional Day of training the Thursday before the HDSA national convention each June. This includes plane/train transportation, mileage to and from airport, parking, hotel transport, hotel room for at least 2 nights and meals. The social worker will be paid their hourly wage for 8 hours for professional training. Regional Social workers (especially those new to HD) may also want to negotiate with the Region for hotel funding to attend workshops at the national convention to bolster their HD education and help them increase their core HD knowledge. This arrangement should be worked out with Regional administration prior to convention.

A social worker will need to comply with the licensure of their state to complete needed CEUs. Some CEUs will be offered during HDSA Professional Training.

Spanish fluency a plus

Job Types: Part-time, Contract

Pay: $28.00 per hour

Medical Specialty:

  • Home Health
  • Hospice & Palliative Medicine
  • Psychiatry

Application Question(s):

  • Do you have a social work license in Tennessee?

Education:

  • Master’s (Required)

License/Certification:

  • LMSW/Social Work License (Required)

Willingness To Travel:

  • 25% (Required)

Full Time Opportunity:

  • No

Work Location:

  • Multiple locations

This Job Is:

  • A good fit for applicants with gaps in their resume, or who have been out of the workforce for the past 6 months or more
  • A job for which all ages, including older job seekers, are encouraged to apply
  • A job for which people with disabilities are encouraged to apply

Company’s website:

  • www.hdsa.org

Work Remotely:

  • Yes

COVID-19 Precaution(s):

  • Remote interview process
  • Virtual meetings

Click Here to Apply

South Dakota Chapter Social Worker

Job details

Salary: $30 an hour

Job Type: Part-time Contract

Number of hires for this role: 1

Qualifications

    • Master’s (Required)
    • LMSW/Social Work License (Required)

Full Job Description

Job Description: The function of a Chapter HDSA Social Worker is to assist individuals and families affected by Huntington’s disease and related health care professionals by providing an optimum level of support through supportive and psychoeducational counseling, information and referrals to appropriate resources throughout the state of South Dakota. HDSA social workers provide referrals to community services, help to create community awareness about HD, promote advocacy and encourage research participation. Case management is not the primary function of the Chapter Social Worker, some case management services may be needed on a case-by-case basis. The social worker should be familiar with crisis services available in the community for callers needing crisis mental health or medical services.

Available Hours: 20hrs/Month

Responsibilities:

The position will include responding in a timely manner to helpline calls, emails, leading a local support group and monitoring regional support groups, assisting the chapters within their region without dedicated social workers with educational events and quarterly fund raising events. The social worker will create and maintain a resource guide to answer questions on relevant issues important to the community. The social worker will interact with regional professionals (home health agencies, long-term care facilities, MDs and clinics, law enforcement) to educate and inform so that new avenues for services are made available to families. These resources are shared with the national office quarterly in order to ensure wide distribution of resources.

An HDSA Chapter Social Worker will work on the following core competencies to improve their knowledge of HD to assist in their practice in their first 6 months of hire. The Assistant Director of Youth & Community Services will help new social workers have access to this information.

  • What is HD? Be able to discuss neurodegenerative disorders, CAG repeat, triad of symptoms and JHD
  • Understanding the need for multidisciplinary evaluations and the role of the following professionals that might include neurologist, movement disorder neurologist, psychiatrist, psychologist, and neuropsychologist. The list can also include speech- language pathologist, occupational therapist, physical therapist, and nutritionist.
  • Medications for psychiatric and movement symptoms.
  • Genetic testing guidelines- GINA, basic genetics
  • Advanced medical directives- conservatorship/guardianship, special needs trust, hospice/palliative care, durable power of attorney, medical power of attorney
  • State and federal insurances- long term care insurance, state Medicaid guidelines and waivers, Medicare, SSDI/SSI
  • Research- Phase1-4 trials, observational vs medicine trials, how to access trial information, where to get current research information
  • Family dynamics- unique family dynamics occur with an inherited disease
  • Long term care- facilities with HD units or facilities that have accepted HD persons in the past.

Social workers will be provided with a phone number with voicemail and texting capabilities through Zoom to act as their work phone. Social workers will be expected to utilize this service on their own devices through their mobile phone carrier provider.

License and continuing education:

Social workers are expected to maintain state licensing requirements and may participate in relevant HDSA webinars no more than 10% of hours worked monthly. It is critical to keep abreast of relevant HD updates through HDSA and other entities. Social workers will be paid for this time by the Region.

Social workers are required, and are supported by the Regional budget, to attend the annual Professional Day of training the Thursday before the HDSA national convention each June. This includes plane/train transportation, mileage to and from airport, parking, hotel transport, hotel room for at least 2 nights and meals. The social worker will be paid their hourly wage for 8 hours for professional training. Regional Social workers (especially those new to HD) may also want to negotiate with the Region for hotel funding to attend workshops at the national convention to bolster their HD education and help them increase their core HD knowledge. This arrangement should be worked out with Regional administration prior to convention.

A social worker will need to comply with the licensure of their state to complete needed CEUs. Some CEUs will be offered during HDSA Professional Training.

Spanish fluency a plus

Job Types: Part-time, Contract

Pay: $30.00 per hour

Medical Specialty:

  • Home Health
  • Hospice & Palliative Medicine
  • Psychiatry

Application Question(s):

  • Do you have a social work license in South Dakota?

Education:

  • Master’s (Required)

License/Certification:

  • LMSW/Social Work License (Required)

Willingness To Travel:

  • 25% (Required)

Full Time Opportunity:

  • No

Work Location:

  • Multiple locations

This Job Is:

  • A good fit for applicants with gaps in their resume, or who have been out of the workforce for the past 6 months or more
  • A job for which all ages, including older job seekers, are encouraged to apply
  • A job for which people with disabilities are encouraged to apply

Company’s website:

  • www.hdsa.org

Work Remotely:

  • Yes

COVID-19 Precaution(s):

  • Remote interview process
  • Virtual meetings

Click Here to Apply