To view presentations please click on the links below. The links labeled recorded will bring to another website to view the recording of that presentation. Those noted as “presentation only” have a PDF powerpoint presentation. You must have Acrobat Viewer to view them. Please click here if you need to download Acrobat Viewer. Please note that not all workshops have presentations. We thank all of our presenters for sharing their presentations.
Between a Rock & a Hard Place: Helping Young People Cope with Grief, Loss and the Reality of HD
Building Awareness Through Social Media
Demystifying Clinical Trials: What’s it like & why do they need me?
Do I really need a primary care doctor too?
HD 101: Genetics and Disease Progression
I’ve Got the Music in Me: Using Music as Therapy for Everyday Life
Long Term Care- What to Expect
Effective Strategies for Educating Law Enforcement and Medical First Responders on HD
Doug Schulte
Morgan McLane
Exercise and HD
Fundraising: Easy Steps to Success!
Preparing for Your Disability- Disability, Life, Health Insurance, Employee Benefits and Estate Planning
Strategies for Managing Depression
Young Adults as Caregivers
Ask the Scientist… anything!
Advocacy
Family Planning
Huntingtin Lowering Approaches to Treat HD
Hurry Up and Wait: Thinking About Thinking with HD
Talking About HD
Team Hope Walks – If You Build It, They Will Walk!
The How Tos of Social Security Disability
Saturday, June 4, 2016
HDSA Research Forum
Cognitive Impairment in Huntington’s Disease: Tips for Managing Cognitive Decline Over the Course of the Illness
Doubling Your Volunteer Base and Increasing Support in the Community
Living Positively with HD
Making the Foods You Love Work for You
Potential New Therapies
Your Loved One with Special Needs: Making Their Future More Secure
JHD: Beyond the Diagnosis
Legal Issues
Moving Beyond Mice: Understanding HD in People
Role of Speech-Language Pathologist and HD
Strategies for Managing Aggression
Survivors Guilt
Why is HD Still Diagnosed as a Motor Disease
