To view presentations please click on the links below. The links labeled recorded will bring to another website to view the recording of that presentation. Those noted as “presentation only” have a PDF powerpoint presentation. You must have Acrobat Viewer to view them. Please click here if you need to download Acrobat Viewer. Please note that not all workshops have presentations. We thank all of our presenters for sharing their presentaions.
FRIDAY, JUNE 20
9:00 – 10:00 A.M. – OPENING CEREMONY (RECORDED)
Welcome
Father Joseph Graffis
President, HDSA Kentucky Chapter
A Message from HDSA Chairman of the Board
Steve Seekins
Plaque Presentations to Pascrell and Kinzinger
Proclamations
Keynote Speaker
Billy McLaughlin
10:30 – 11:45 – WORKSHOPS
BEHAVIOUR ISSUES (RECORDED)
Unawareness and Apathy
Christopher Ross, MD, PhD
COGNITION AND HD (RECORDED)
HD 101 (Presentation Only)
Daniel Claassen, MD
Caregivers
Legal Tips for Caregivers: Estate Planning & Medicaid Strategies
Kristin Lough, Esq.
Youth Ages 7-12
Talking with Friends about HD
Amanda Miller, LMSW
Teens Ages 13-19
Talking with Your Parents about HD
Cori Robin, LCSW
2:15 – 3:30 – WORKSHOPS
COGNITION AND HD (RECORDED)
Peter Como, PhD
Movement and HD – Presentation 1(Presentation Only)
Presentation 2 (Presentation Only)
PT and Movement
Deb Kegelmeyer, PT and Anne Kloos, PT
Youth Ages 7-12
Bringing HD Awareness to Your School
Karen Baker, MSW, LICSW
Caregivers (Presentation Only)
The Caregiver Journey
Stephanie Bernander, PhD
Teens Ages 13-19 (Presentation Only)
Dating and Relationships
Amy Chesire, LCSW-R, MSG
Field Leadership (Presentation Only)
Field Based Education & Advocacy
JHD Parents (Presentation Only)
Diagnosing JHD
Emily DeLos Reyes, MD
4:00 – 5:15 p.m. – WORKSHOPS
BEHAVIOUR ISSUES (RECORDED)
Irritability and Depression
Christopher Ross, MD, PhD
COGNITION AND HD (RECORDED)
Managing Cognitive Problems (Presentation Only)
Daniel Claassen, MD
All Attendees
Advocacy
Jason Gromley, ESQ, Paul Lee and Jane Kogan, LMSW
Young Adults
To Test or Not To Test
Panel Discussion
Moderator: Kathleen Collins, LCG
Panelists: Lauren Holder, David Tovar,
HDSA Field Leadership (Presentation Only)
Start a Team Hope Walk In Your Community
JHD Parents
Special Needs
MetLife
SATURDAY, JUNE 21
9:00 – 10:15 A.M.
Welcome and Introductions
George Yohrling, PhD
HDSA Director, Medical and Scientific Affairs
Keynote Speaker
Leslie Thompson, PhD
Professor, University of California, Irvine
Breakfast Served (see program for details)
10:45 a.m. – NOON -HDSA RESEARCH FORUM PART 2 (RECORDED)
HD Human Biology Project Update
Human Huntingtin CSF Assay Development
Andreas Weiss, PhD
IRBM Promidis s.r.l, Italy
Advances in HD Drug Discovery
Ed Wild, MD, PhD
Clinical Lecturer
University College of London, Institute of Neurology
Jeff Carroll, PhD
Assistant Professor
Western Washington University
1:45 – 2:45 P,M. – WORKSHOPS
MOVEMENT AND HD (RECORDED)
Early Motor Symptoms
Sandra Kostyk, MD
LIVING WITH HD (RECORDED)
In Home Care Options (Presentation Only)
Teresa Lee, JD, MPH
Young Adults (Presentation Only)
Coping with Positive Result
Kathleen Collins, LGC
All Attendees
Meet the HDSA Board of Trustees
3:00 – 4:00 P.M. – WORKSHOPS
MOVEMENT, COGNITION AND BEHAVIOUR (RECORDED)
Obsessive and Compulsive Behavior (Presentation Only)
Arik Johnson, PsyD
MOVEMENT AND HD (RECORDED)
Deb Kegelmeyer, PT and Anne Kloos, PT
Managing Late Stage HD (Presentation Only)
Don Higgins, MD
Youth Ages 7-12
Talking to Your Parents About HD
Amanda Miller, LMSW
Teens Ages 13-19
Support Group
Lisa Kjer, LCSW
YOUNG ADULTS (RECORDED
Family Planning (Presentation Only)
Andrew Burrow, MD
HDSA RESEARCH
Potential New Therapies
Ottavio Vitolo, MD
Pfizer
Angel Angelov, MD, MBA
Teva Pharmaceuticals
HDSA Field Leadership (Presentation Only)
Building HDSA Awareness
4:15 – 5:15 P.M. – WORKSHOPS
COGNITIVE, BEHAVIORAL AND MOTOR SYMPTOMS (RECORDED)>
Alternative Therapies
Sandra Kostyk, MD
ASSESSING DISABILITY (RECORDED)
PDF Presentation
Art Spencer
Young Adults (Presentation Only)
Managing Relationships
Amy Chesire, LCSW-R, MSG
JHD Parents
Support Group
Barbara Heiman, LISW
HDSA Field Leadership
Fun and Simple Events
