860 family members, clinicians, researchers and interested guests attended the 27th Annual HDSA Convention in Las Vegas, June 9-11.
Videos of major symposia and several workshops are available by clicking on the pages below. Powerpoint presentations from other workshops will be available in the next few weeks.
Opening Ceremony
Welcome from Jenny Rogers, Chair of Las Vegas Affiliate of HDSA; Message from HDSA by Don Barr , Chair of HDSA Board of Trustees; State of the Society by Louise Vetter, CEO
We Are HDSA
Panel of HDSA family Members : Ted Krull, Shana Martin, Ken Serbin
Saturday Morning
HDSA Research Keynote Address
Huntington’s Disease – Yes We Can!
Sarah Tabrizi, MD, FRCP, PhD
University College London
Clinical Research Showcase
Moderator: Ira Shoulson, MD
Panelists:
Bernard Landwehrmeyer, MD, PhD – ENROLL-HD
Jane Paulson, PhD – PREDICT 2.0
Steven Hersch, MD, PhD – CREST-E
Ira Shoulson, MD – Reach2HD
Workshops
Movement and HD HD 101: Martha Nance, MD
Behavior, Cognition and Movement and HD
Alternative Medicine: Kathleen Shannon, MD
Ethical Issues
Psychological Consequences of a Negative Test Result: Carol Manning, PhD
Behavior Issues Treatment Options , Pharmacologic Options: Dylan Wint, MD
Cognition and HD Detection of Early and Mid Stage Cognition Problems: Don Higgins, Jr., MD
Please check back often. We are posting presentations everyday
| Topic | Title | Speaker | Presentation for Download |
| Behavior Issues | Behavior Management Issues in Early HD | Lorin Scher, MD | Presentation for Download |
| Cognition and HD | Overview of Cognitive Problems and HD | Jane Paulsen, PhD | Presentation for Download |
| Movement and HD | HD 101 | Martha Nance, MD | Presentation for Download |
| Ethical Issues | Caring for the Caregiver | Amy Chesire, LCSW-R, MSG | Presentation for Download |
| All Attendees | Estate Planning | MetLife Center for Special Needs Planning, Robert Westbrook, CLU, ChFC, CFP© & Mark Loftis, CFP©, CLU, ChFC |
Presentation for Download |
| Field Leadership | Board, Volunteer and Committee Development | Presentation for Download | |
| JHD | What Is Juvenile Onset HD? | Sandra Kostyk, MD, PhD | Presentation for Download |
| Behavior Issues | Managing Behavior Non-Pharmacologic Approaches |
Donna Munic-Miller, PhD | Presentation for Download |
| Cognition and HD | Detection of Early and Mid Stage Cognitive Problems | Don Higgins, Jr., MD | Presentation for Download |
| Movement and HD | Medical Management of Motor Symptoms | Victor Sung, MD | Presentation for Download |
| All Attendees | How to Start an HDSA Support Group | Seth Meyer, LMSW | Presentation for Download |
| HDSA Field Leadership | Start a Team Hope Walk in Your Community | Presentation for Download | |
| JHD | JHD Natural History | Jane Paulsen, PhD | Presentation for Download |
| Behavior Issues | Treatment Options Pharmacologic Options |
Dylan Wint, MD | Presentation for Download |
| Movement and HD | Nutrition Assistance | Zhaoping Li, MD | Presentation for Download |
| Ethical Issues | Psychological Issues of Testing Positive for HD | Kim Quaid, PhD | Presentation for Download |
| All Attendees | Advocacy Meet and Greet | Peggy Tighe, JD, Jason Gromley, Esq. and Jane Kogan, LMSW |
Presentation for Download |
| Youth, Teens and Young Adults | The Genetic Testing Process Unraveled | Katie Plunkett, MS | Presentation for Download |
| HDSA Field Leadership | Create a New Fundraising Event in Your Community | Presentation for Download | |
| JHD | Multidisciplinary Approach to Treatment and Care | Martha Nance, MD | Presentation for Download |
| HDSA RESEARCH | Huntington’s disease – Yes We Can! | Sarah Tabrizi, MD, FRCP, PhD | Presentation for Download |
| HDSA RESEARCH | CLINICAL RESEARCH SHOWCASE | Moderator: Ira Shoulson, MD Panelists: Bernhard Landwehrmeyer, MD, PhD – ENROLL-HD Jane Paulsen, PhD – PREDICT 2.0 Steven Hersch, MD, PhD – Crest-E Ira Shoulson, MD – Reach2HD |
Presentation for Download |
| Behavior, Cognition and Movement and HD | Alternative Medicine | Kathleen Shannon, MD | Presentation for Download |
| Ethical Issues | Family Planning | Katie Plunkett, MS and Cheryl Erwin, JD | Presentation for Download |
| Youth, Teens and Young Adults | How Youth and Young Adults Can Make a Difference | BJ Viau | Presentation for Download |
| Juvenile Onset HD | Special Needs Planning | MetLife Center for Special Needs Planning Robert J. Westbrook, CLU, ChFC, CFP® and Donna M. Stefans Esq |
Presentation for Download |
| HDSA RESEARCH | Potential New Therapies | Moderator: Jang-Ho Cha, MD, PhD Panelists: Beth Hoffman, PhD – Vertex Adriana Prundean, MD – Raptor Holly Kordasiewicz, PhD – Isis |
Presentation for Download |
| HDSA Field Leadership | HDSA Clinical Trials Diplomat Training | Sam Frank, MD | Presentation for Download |
| Behavior, Cognition and Movement and HD | How to Communicate with Your Healthcare Provider | Moderator; Donna Munic-Miller, PhD Panel: Victor Sung, MD and Lorin Scher, MD |
Presentation for Download |
| Ethical Issues | Psychological Consequences of a Negative Test Result | Carol Manning, PhD | Presentation for Download |
| All Attendees | Questions to Ask when Looking for a Long Term Care Facility | Rebecca Ferrini, MD and Anthony Lechich, MD | Presentation for Download |
| HDSA RESEARCH | More Hope, Less Hype: Understanding HD Science News | Jeff Carroll, PhD and Ed Wild, PhD | Presentation for Download |
| HDSA Field | Raising Awareness | Presentation for Download | |
| Leadership | About Your HDSA Events Through Media | Presentation for Download |
