HDSA advocacy works to advance legislation and policy to improve the lives of HD families by raising awareness about HD in the U.S. Congress, by promoting legislation, policy and regulations that would help individuals in the HD community, by educating Federal agencies about HD, and by partnering and collaborating with national organizations that have common goals.

CLICK HERE for more information on HD Advocacy.

Learn more about:

Huntington’s Disease Parity Act
Affordable Care Act
Social Security Administration
Research (NIH & FDA)




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