Change to Appointed Representative Rule
What is an Appointed Representative?
Anyone applying for Social Security disability benefits is entitled to an appointed representative. These representatives have the legal authority to speak with Social Security, get claim updates, and help with forms and other paperwork. Representatives can be a friend, family member, a paid Disability Representative, or an attorney.
What is the rule change?
Social Security changed their appointed representative rule in September 2024. Now anyone who wants to act as an appointed representative must formally register with Social Security by completing the SSA-1699. This is a significant change. Previously, an unpaid friend or family representative only had to complete the SSA-1696 Appointment of Representative form and submit it directly to the local Social Security office.
How will this impact the Huntington’s Disease community?
This rule change is going to impact the Huntington’s Disease community. It will make it harder to help individuals impacted by HD through the Social Security disability process. Unfortunately, friends and family are no longer able to speak to Social Security directly. Social Security can only legally speak to the claimant (disability applicant), a legal guardian/conservator, or an appointed representative. The exception is friends and family can call Social Security with the individual impacted by HD. This is not always ideal.
Is it worth registering with Social Security?
The Representative Registration process with Social Security can take weeks, or months. For most people, especially if you only help with one disability claim, it is not a realistic option to register with Social Security. It may be worthwhile if you plan to help multiple people.
Can I still help my loved one apply for Social Security disability benefits?
Yes! This rule changes does not impact any other part of the Social Security disability application process. You can still help complete the application, assist with all Social Security forms, make sure important information gets sent to Social Security, and be an advocate for your loved one.
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