For 57 years, HDSA has been dedicated to improving the lives of everyone affected by Huntington’s disease and their families. Our commitment to this mission is unwavering, but the path to achieving this mission is ever changing. There will be new twists and turns in the path ahead, but today we must recommit ourselves to advocating for and improving the lives of HD families across the country.
HDSA will continue championing the voices of HD families and working with government leaders on both sides to further research, disability rights, and community wellbeing. Our work, like the upcoming Externally-led Patient Focused Drug Development Meeting (EL-PFDD) with the FDA and the efforts of HDSA Advocacy Leaders in 19 states and counting, is ongoing.
In addition, during times of change there are more than 115 HDSA Social Workers supporting HD nationwide. While we realistically cannot address every issue people living with HD might face, we remain steadfast in our commitment to the community.
At HDSA, Family is Everything, and we are proud to stand with our HD family – today and always.
