WE NEED YOUR HELP TO PASS THE HD PARITY ACT!
From Monday, November 15th – Sunday, November 21st, the HD Community will be going all out in our effort to pass the Huntington’s Disease Parity Act – a crucial bill that would waive the two-year waiting period for people with Huntington’s disease to receive Medicare benefits. HDSA has prepared a call to action for each day this week as part of the 7 Days of Action initiative to activate the Huntington’s disease community.
MONDAY, NOVEMBER 15TH
Go to www.hdsa.org/takeaction and send a message to your Member of Congress, and share your action on Facebook, Twitter, LinkedIn & Instagram!
TUESDAY, NOVEMBER 16TH
Share a photo of yourself and your loved one with HD on Facebook, and tag @RepRichardNeal, @NancyPelosi, @SenSchumer @senatorronwyden with the message: “I love someone impacted by #HuntingtonsDisease. It’s time we passed #HR2050 #S868
WEDNESDAY, NOVEMBER 17TH
Go to www.hdsa.org/takeaction and CALL your member of Congress’ office! Use the script provided and ask them to Pass the HD Parity Act.
THURSDAY, NOVEMBER 18TH
Share this video (Meet James) on Facebook, and tag @SenKirstenGillibrand, @Pascrell, @RepKinzinger and @SenBillCassidy with this message:We need you to help us pass #HR2050 #S868. Speak to your colleagues, and act on your promises to make the #HDParityAct your number 1 policy priority so we can #PassTheHDParityAct
FRIDAY, NOVEMBER 19TH
Ask 5 friends to send a message to their Members of Congress at www.hdsa.org/takeaction
SATURDAY, NOVEMBER 20TH
Share a video of yourself on Facebook, Instagram and Twitter, using the script below, to ask your Members of Congress to Pass the HD Parity Act:
“Some of you may know this, but I love someone impacted by Huntington’s disease. HD is a fatal, genetic neurodegenerative disease. It strikes during your prime working years, and each child of a parent with the gene expansion that causes HD has a 50/50 chance of inheriting that gene expansion and becoming sick. Having HD is like getting a diagnosis of early onset Alzheimer’s, a diagnosis of Parkinson’s disease and a diagnosis of ALS, all starting between the ages of 30-50. We need congress to act now to pass the Huntington’s Disease Parity Act, and waive the harmful 2-year waiting period for Medicare for folks with HD accessing SSDI. Please, pass HR 2050/S 868 now.”
SUNDAY, NOVEMBER 21ST
Do you belong to an HD support group, HDSA Chapter or Affiliate, or an HD fundraising event board? Ask your fellow members to reach out to their Members of Congress today, by going to www.hdsa.org/takeaction.
For more information about HDSA’s advocacy efforts, please visit HDSA.org/takeaction or contact Jennifer Simpson.
