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What is
HD?
- What Is HD?
  
  Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.
  History and Genetics of Huntington’s Disease
  
  Overview of HD
  
  Who Is At-Risk?
  
  Genetic Testing & Family Planning
  
  Juvenile Onset HD
  
  History of HD
  Huntington’s Disease Symptoms
  
  The Age of Onset
  
  Motor / Physical Symptoms
  
  Cognitive Symptoms
  
  Behavioral / Psychological Symptoms
  Stages of Huntington’s Disease
  
  Early Stage
  
  Middle Stage
  
  Late Stage
Find
Help
- Find Help
  
  Locate HDSA Chapters and Affiliates, Support Groups, Social Workers, and Centers of Excellence in your area as well as additional local medical, legal, social, and therapeutic resources for people with HD and their families.
  LOCATE RESOURCES IN YOUR AREA
  
  Clinical Care & Services
  
  HDSA Centers of Excellence
  
  Symptom Management
  
  Suicide Prevention
  
  Healthcare & Future Planning
  
  Genetic Testing & Your Rights
  
  Disability Benefits and HD
  
  Long-Term HD Care
  Living Well With HD
  
  Nutrition
  
  Exercise / Physical Therapy
  
  Swallow Dysfunction & Choking
  
  Speech
  
  Law Enforcement Training Guide
  Community & Social Support
  
  Youth Services
  
  Caregiver Services & Resources
  
  HDSA Telehealth
  
  HDSA Support Groups
  
  HDSA Social Workers
  
  HDSA Resource Library
HD
Research
- HD Research
  
  Since 1999, the Huntington’s Disease Society of America has committed more than $20 million to fund research, with the goal of finding effective treatments to slow Huntington’s disease. Our research efforts have helped to increase the number of scientists working on HD and have shed light on many of the complex biological mechanisms involved.
  Participate in HD Research
  
  HD Trialfinder
  
  Participate in Online Surveys
  
  Enroll-HD
  Learn About HD Research
  
  This Week In HD Research Blog
  
  HDSA Research Webinars
  
  HDBuzz
  
  Annual HDSA Research Reports
  
  HD Research in the Pipeline
  HDSA Research Funding Programs
  
  HD Human Biology Project
  
  Donald A. King Fellowship
  
  Berman-Topper Fellowship
  
  Spotlight on HD Researchers
  
  HD Cope
  
  Scientific Advisory Board
Healthcare
Professional Resources
- Healthcare Professional resources
  
  This section includes online courses for physicians, social workers and therapists who care for people with HD at the local level. Courses deal with cognitive, physical, therapeutic, technological and legal HD issues among other topics. This section also includes reference materials in video and PDF format for Social Workers on HD issues listed by varied categories.
  HD 101: CME SERIES
  SOCIAL WORKER CONTINUING EDUCATION
  
  RESOURCES FOR PHYSICAL THERAPISTS
  PT CONTINUING EDUCATION
  
  RESOURCES FOR SOCIAL WORKERS
  OT CONTINUING EDUCATION
  
  GENETIC COUNSELORS CONTINUING EDUCATION
Get
Involved
- GET INVOLVED
  
  When Marjorie Guthrie founded our organization in 1967, her vow was to “do something” about this devastating disease. Today we continue her legacy by bringing together the entire community to provide help and hope to all families affected by Huntington’s disease. Listed here are some of the ways you can get involved in the fight against HD.
  DONATION OPPORTUNITIES
  
  One-Time Donation
  
  Monthly Giving
  
  Tribute & Memorial Donations
  
  Stocks / Assets / Real Estate
  
  Legacy Giving
  
  Matching Gifts Program
  
  Workplace Giving
  
  Vehicle Donations
  
  HDSA Tree of Help & Hope
  
  HDSA Family Funds
  
  Sweepstakes
  
  Corporate Partnerships
  Volunteer Opportunities
  
  Volunteer Registration
  
  Volunteer Spotlight
  
  HDSA New York City Marathon
  
  HD ADVOCACY
  
  Team Hope Walk Program
  HDSA Events
  
  Flowers for HDSA
  
  Publications
  
  Shop HDSA Partners

news
hdbuzz an updated trial design for roches huntingtin lowering trial roche announces an update to the generation hd1 trial after reviewing the aso open label extension study

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HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study

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Email: HDSAinfo@HDSA.org

© 2025 Huntington’s Disease Society of America. All rights reserved.
A charitable organization with 501(c)(3) tax-exempt status. EIN: 13-3349872

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