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Shana Verstegen is the former president of the HDSA Wisconsin chapter (2007-2013) and has served as a Huntington’s Disease Society of America national spokesperson since 2002. She received her bachelor’s degree in kinesiology and exercise science at the University of Wisconsin in 2002, and went on to earn the Log Rolling World Champion title in 2006, 2007, 2008, and 2012, and the Boom Run World Championship in 2008 and 2009.
Verstegen currently travels the country as a trainer for the American Council on Exercise – San Diego, TRX Training San Francisco, and Supreme Health and Fitness based in Madison, Wisconsin. She has helped raise public awareness about HD by making numerous television appearances on programs including the Tonight Show with Jay Leno, the Wayne Brady Show, Girls Behaving Badly (Oxygen Network), and a special ESPN feature about Huntington’s disease. In print she has been featured in venues including Oxygen, Women’s Physique World, Muscle & Fitness, Wisconsin Woman, and Newsweek magazine. While she says she has many things to be proud of, her work with HDSA in honor of her mother will always top that list. Her mother, Debby Martin, died from complications of Huntington’s disease in March 2013. Verstegen says that watching her mother lose her ability to move independently inspired her to live every day to the fullest with a focus on movement—from being the first female pole vaulter at the University of Wisconsin to winning a half dozen lumberjack titles. Verstegen is passionate about raising awareness toward finding a cure for Huntington’s disease, and fundraising to make that research and cure possible.