Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Page 8 Page 9 Page 10 Page 11 Page 12 Page 13 Page 14 Page 15 Page 16 Page 17 Page 18 Page 19 Page 20Statement of Financial Position 2015 2014 ASSETS Cash and cash equivalents 4,537,268 3,617,512 Investments, at fair value 425,792 264,773 Pledges and contributions receivable, net 1,115,008 1,145,369 Other receivables 214,806 Prepaid expenses and deposits 144,645 113,203 Property and equipment, net 45,608 36,595 Total Assets 6,268,321 5,392,258 LIABILITIES Accounts payable and accrued expenses 220,345 89,542 Accrued compensation 249,235 188,935 Research grants payable 540,161 1,237,883 Deferred rent 72,116 18,894 Obligation under capital lease 2,626 9,773 Deferred revenue 34,010 39,867 Total Liabilities 1,118,493 1,584,894 NET ASSETS Unrestricted Undesignated 204,517 161,190 Board-operating reserve 686,827 511,664 891,344 672,854 Temporarily restricted 4,008,484 2,884,510 Permanently restricted 250,000 250,000 Total Net Assets 5,149,828 3,807,364 Total Liabilities And Net Assets 6,268,321 5,392,258 NOTE: These Consolidated Statements reflect HDSA’s operations for the fiscal years as stated and include all affiliates. Please contact the National Office for a full copy of the audited financial statements. AS OF DECEMBER 31, 2015 AND 2014 7 HDSA 2015 ANNUAL REPORT 2015 Year in Review TEAM HOPE Because of the tireless efforts from volunteers, family members, friends and communities 2015 was a banner Year for HDSA’s Team Hope walk program. In 2015, the Team Hope walk program: n Raised more than $2 million dollars n Welcomed more than 18,000 walkers n Increased our online giving by more than 10% n  More than doubled our matching gift donations with an increase of 143%! Thank you to all our volunteers, supporters and our National Team Hope Walk Sponsors: Auspex Pharmaceuticals, Lundbeck, Inc., Teva Pharmaceuticals and Carefoam. LIFE IN HD After folk music legend Woody Guthrie died from complications with HD in 1967 at the age of 55, his wife Marjorie founded HDSA the following year. On May 27th, HDSA paid tribute to the Guthrie family legacy by going back to its roots with inspiring family stories and great music at the 2015 “Life in HD” event at the Baruch Performing Arts Center in New York City. New York Times bestselling author Lisa Genova of Inside the O’Briens and Emmy Award winning anchor Allie LaForce shared the stage in an inspiring and educational conversation about HD and the impact it has on a family, before Woody Guthrie’s granddaughter Anna Canoni discussed the Guthrie family’s HD story and went on to introduce singer/ songwriter Marc Scibilia. Allie LaForce was Miss Teen USA in 2005 and is currently one of the nation’s top sports reporters. Allie is married to Major League pitcher Joe Smith. Joe’s mother, Lee, is courageously battling HD. At right: Louise Vetter, Allie LaForce, Lisa Genova, Marc Scibilia, Jennifer Leyton, and Anna Canoni 6 HDSA 2015 ANNUAL REPORT