2024 Rare Disease Day

📢 UPDATE- NEW Goal for Rare Disease Day 2024!

We are excited to share that we have SURPASSED our initial $10,000 goal and UNLOCKED the full match from our generous and inspiring donors! Together we raised over $20,000, and we could not have done it without you- thank you.

With so much more to do to advocate for HD and all rare diseases and provide CARE, CURE, and COMMUNITY for HD families, we are INCREASING our goal to $25,000! Help us reach our goal by the end of the day...only a few hours remain!

Raise awareness for HD by sharing to your social media!

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Rare is STRONG. Rare is PROUD. Rare is MANY!

Leap years come every four years and this year we have an extra day to reflect, celebrate life, but most importantly - raise awareness for our HD family.

This year, Rare Disease Day falls on that extra day, February 29th, 2024. The RAREST day of the year! For the HD community, this means an extra day to support each other, to spread the word about HD, and to advocate for all rare diseases and the 300 million people who live with them every day.

Our goal on this day is to share our dedication and fight against Huntington’s disease with the world! Help us raise awareness as we continue to provide world-class HD resources to families across the country. We are counting on you to help us reach our goal of $10,000 and unlock the matching gift challenge, raising $20,000 for HDSA programs, research and family services!

Click here to add Rare Disease Day to your Calendar!📅

Thank you!

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