Social Security Disability Insurance (SSDI)

Social Security Disability Insurance (SSDI) pays benefits to those with a disability when they are no longer able to work. SSDI is based on the number of years you have worked and paid taxes into the federal system. The number of years needed to qualify for benefits will depend on your age.
It is not necessary to hire an attorney or a non-attorney Social Security Representative or Advocate to assist with a disability claim but it is important to provide thorough documentation to the Social Security Administration about how the person with HD is totally disabled from the disease. This often includes reports from multiple sources with information on how the person is disabled. Employers and caregivers can also provide information along with the medical reports as part of the disability claim.

Supplemental Security Income (SSI)

Supplemental Security Income (SSI) pays benefits based on financial need. Please use the Social Security Administration website as a helpful tool to apply for benefits or to assess eligibility.


CLICK HERE FOR The Social Security Administration


Caring Voice Coalition

Caring Voice Coalition is an organization that assists patients at no cost with applications for Social Security Disability Insurance (SSDI) and Social Security Income (SSI). Caring Voice advocates help to coordinate supporting evidence, assess eligibility, submit claims for benefits and draft arguments.




Long Term Care (LTC) Insurance

Long Term Care (LTC) Insurance policies can assist in future caregiving needs such as in-home care, assisted living, nursing home care and respite care. Long-term care insurance should be considered prior to diagnosis as plans can cover home health services as well as nursing home care. Coverage for persons diagnosed with HD is not guaranteed under the law. For more information on this topic, the American Association for Long Term Care Insurance website is helpful.


CLICK HERE FOR The American Assoc. for Long Term Care Insurance