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Personal Narratives

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Homeward Journey
The Poetry of Leslie R. Foor

Leslie R Foor, 2003, 140 pages. Depicts a young writer’s life through the art of poetry. Mr. Foor was affected by HD in his mid thirties but he never gave up hope. He continued to write poems until his struggle with the disease ended at the age of 48.

Percentage of the proceeds from this book benefit HDSA programs.

PURCHASE: You may order bound, printed copies of this publication by simply ADDING TO CART or by calling 800-345-4372 ext 219.

QUANTITY:

Price: $14.95

The Greatest Man I Never Knew

Elizabeth Baxter, 2012 168 pages.  A story about a daughter coping with the loss of her father, the man she never knew.  In the story, she describes some of her own struggles and strengths since she herself is at risk for Huntington’s disease, the same disease that had robbed her of her father.

PURCHASE: You may order bound, printed copies of this publication by simply ADDING TO CART or by calling 800-345-4372 ext 219.

QUANTITY:

Price: $22.00

It’s Better to Laugh Than Cry

Clarence Vos, 2013, 83 pages.  A look at one family’s journey through Huntington’s disease and efforts to stay positive through the journey.

PURCHASE: You may order bound, printed copies of this publication by simply ADDING TO CART or by calling 800-345-4372 ext 219.

QUANTITY:

Price: $10.00

Books

Given Away: A Sicilian Upbringing

by Anna Randazzo

A story of a young girl’s perseverance through the the travails of World War II and beyond. An inspiring tale of the human will to triumph over adversity. 10% of the proceeds from sales of Given Away: A Sicilian Upbringing will benefit HDSA’s mission.

TO ORDER:
In print:  http://www.amazon.com/Given-Away-A-Sicilian-Upbringing/dp/0989481921

E-BOOK:  https://www.smashwords.com/books/view/327465

An AffaiЯ Worth Remembering With Huntington’s Disease

Price: $25.00 USD

Huntington’s Disease is a progressive, life stripping hereditary disease for which there is no cure. LOVE is the most powerful medicine available in living with and caring for a person at-risk and in the throes of it. This is a Love Story that illustrates how a marriage and a family can live, survive and thrive with an illness. Humor, frustration and sadness are just a few emotions experienced by the reader. True Love prevails as this disease bruises and batters a family’s spirit. Many gifts are discovered during times of illness. Incurable love and intimacy are two such gifts.

This book is the Author’s journey as wife, mother, breadwinner, caregiver and widow/spouse survivor of Huntington’s Disease. It is about creating “Awareness” and giving the families affected by Huntington’s Disease a “Voice” to a situation that few understand including friends, family, co-workers, and the community. Huntington’s Disease is REAL and knowledge of the disease and it’s ripple effect on a family is REAL.

This book speaks to at least four communities, those affected by Huntington’s Disease or any chronic, progressive or terminal illness; the spiritual community, those who find strength through faith in the most trying moments; the therapeutic community, those who treat individuals, couples and families affected by illness; and the medical community, those doctors and other medical professionals, whether in primary care or specialists, who treat the patient, their caregivers or other family members of the illness, which can complicate the healing process.

Book Talks & Signings:

Debbiepausig.books@gmail.com                 North Haven, CT, USA                      203.985.8246

Purchase a signed copy from me personally at www.debbiepausigmft.com in the “Affair Worth Remembering” tab and order via PayPal, then go to the “Contact Me” tab and enter the code DALLAS15 in the notes section and any special inscription you would like. $1.00 from each book sale will be donated to HDSA. Thanks!

Or-Purchase via Print on Demand through the publisher at: www.Lulu.com/content/15318021

Shattered Dreams–But Hope

By Elton Higgs

Shattered Dreams–But Hope is a distillation of the experiences of Laquita and Elton Higgs in caring for their two JHD adopted daughters. Laquita and Elton have not only shared their own caregiving experiences at a deeply personal level, but they have also offered observations and recommendations to other HD caregivers about coping with the special challenges and stresses of HD. They address the special characteristics and needs of a JHD patient, measures to preserve the mental and physical health of the caregiver, and ways of dealing with the governmental and medical agencies who must be sought to meet the needs of an HD patient and his/her family. But this is also a book for all long-term caregivers, whatever the disablement of the one being cared for. The concluding chapter portrays what two people of faith have learned about suffering, endurance, and love when grappling with the challenge of caring for a loved one day after day, year after year.

100% of the proceeds will go to HDSA.

QUANTITY:

Price: $9.00

Watching Their Dance

100% of the proceeds from “Watching Their Dance” is being donated to HDSA

To purchase “Watching Their Dance” go to Therese’s author website:   www.theresecrutchermarin.com It’s also available on Amazon, B&N and in Kindle, Nook, Kobo formate.

Therese Crutcher-Marin, B.S., M.S.

Member on the HDSA Northern California Chapter Board

Author of Watching Their Dance: Three Sisters, A Genetic Disease and Marrying Into a Family Living At Risk for Huntington’s

Synopsis:  Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s

Would you marry the man you adored if you knew he had a chance of inheriting one of the cruelest diseases on earth?

Therese Crutcher is not a risk taker. Through meticulous planning, she eliminates as much uncertainty from her life as she can. Yet during her senior year of college, blithely planning to marry her beloved John Marin, she is suddenly thrown into turmoil when John’s sisters announce they finally know what killed their mother. Phyllis had Huntington’s disease, an inherited neurological disease with horrible odds: John and his three older sisters have a fifty-percent chance of inheriting this terrible wasting disease, which slowly kills the brain cells that affect movement and cognition. There is still no treatment or cure.

Therese takes the biggest gamble of her life and marries John despite his precarious future. Thus unfolds a life filled with unpredictability, tough choices, and pain, and yet full of love, good times, and great joy. Therese comes to realize that the uncertainty she willingly took on has opened her heart to love more deeply; that acknowledging her world could change overnight has made her life richer. She has learned to overlook shortcomings and to compromise, to let go of anger when she can’t control a situation, to find joy in the simple things. Life is just too precious to waste a moment on small stuff. And though John’s sisters leave this world far too soon, the Marin siblings, she realizes, have taught her about embracing life, forgiveness, and unconditional love.

Visit my Author Website: theresecrutchermarin.com

Visit my Author Facebook Page:  https://www.facebook.com/authortheresecrutchermarin/  

Amazon Author Page: https://www.amazon.com/author/theresecrutchermarin

amazon.com/author/theresecrutchermarin

https://www.goodreads.com/book/show/34703766-watching-their-dance

Limited Edition Woody Guthrie Tribute Concert Box Sets Signed by Nora Guthrie

On January 20, 1968, the “A Tribute To Woody Guthrie” concert at Carnegie Hall was the first major fundraiser for the Huntington’s Disease Society of America (formerly known as the Committee to Combat Huntington’s Disease).

To celebrate its 50th Anniversary, HDSA is selling Limited Edition Box Sets signed by Woody Guthrie’s daughter, Nora!

The 3-CD Set with two beautifully illustrated books containing historic liner notes and Guthrie biography, original concert reviews and photographs, attendees interviews and artists bios, and concert ephemera from both the 1968 Concert and the 1970 Concert at the Hollywood Bowl.

When Woody Guthrie died on October 3, 1967, after a stubborn fifteen year bout with Huntington‘s disease, a lot of people who had known him, worked with him, or just sung his songs felt a spontaneous desire to do something.

The list of artists joined Woody’s own friends and peers with the next generation of songwriters and musicians just coming into their own. Appearing at the January concert were Judy Collins, Bob Dylan (in the first public appearance after his motorcycle accident in 1966 with members of The Band), Jack Elliott, Arlo Guthrie, Richie Havens, Odetta, Tom Paxton, Pete Seeger. Actors Will Geer and Robert Ryan narrated the program. Both performances were sold out an hour after tickets went on sale. Those fortunate enough to attend participated in one of the most exciting and remarkable musical experiences of all time.

Two years later, eighteen thousand people attended the west coast Tribute which took place on September 12, 1970, at the Hollywood Bowl. Joan Baez, Jack Elliott, Arlo Guthrie, Odetta, Country Joe McDonald, Richie Havens, Earl Robinson and Pete Seeger performed. Peter Fonda joined Will Geer in narrating. The house band included members of Swampwater and Ry Cooder.

This amazing Box Set features:

  • Twenty never before released tracks
  • Bonus tracks include interviews with Judy Collins, Jack Elliott, Arlo Guthrie, Country Joe McDonald, Phil Ochs, Tom Paxton, and Pete Seeger
  • Rare photos and never before seen stills from the Hollywood Bowl show film masters
  • Essays by Will Kaufman, Wenzel, and Sean Wilentz
  • Reproduction of the original 1972 TRO Concert Book includes historic and concert photos with music notations and lyrics.

Price: $130.00