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Personal Narratives

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Homeward Journey
The Poetry of Leslie R. Foor

Leslie R Foor, 2003, 140 pages. Depicts a young writer’s life through the art of poetry. Mr. Foor was affected by HD in his mid thirties but he never gave up hope. He continued to write poems until his struggle with the disease ended at the age of 48.

Percentage of the proceeds from this book benefit HDSA programs.

PURCHASE: You may order bound, printed copies of this publication by simply ADDING TO CART or by calling 800-345-4372 ext 219.


Price: $14.95

The Greatest Man I Never Knew

Elizabeth Baxter, 2012 168 pages.  A story about a daughter coping with the loss of her father, the man she never knew.  In the story, she describes some of her own struggles and strengths since she herself is at risk for Huntington’s disease, the same disease that had robbed her of her father.

PURCHASE: You may order bound, printed copies of this publication by simply ADDING TO CART or by calling 800-345-4372 ext 219.


Price: $22.00

It’s Better to Laugh Than Cry

Clarence Vos, 2013, 83 pages.  A look at one family’s journey through Huntington’s disease and efforts to stay positive through the journey.

PURCHASE: You may order bound, printed copies of this publication by simply ADDING TO CART or by calling 800-345-4372 ext 219.


Price: $10.00


Given Away: A Sicilian Upbringing

by Anna Randazzo

A story of a young girl’s perseverance through the the travails of World War II and beyond. An inspiring tale of the human will to triumph over adversity. 10% of the proceeds from sales of Given Away: A Sicilian Upbringing will benefit HDSA’s mission.

In print:


An AffaiЯ Worth Remembering With Huntington’s Disease

Price: $25.00 USD

Huntington’s Disease is a progressive, life stripping hereditary disease for which there is no cure. LOVE is the most powerful medicine available in living with and caring for a person at-risk and in the throes of it. This is a Love Story that illustrates how a marriage and a family can live, survive and thrive with an illness. Humor, frustration and sadness are just a few emotions experienced by the reader. True Love prevails as this disease bruises and batters a family’s spirit. Many gifts are discovered during times of illness. Incurable love and intimacy are two such gifts.

This book is the Author’s journey as wife, mother, breadwinner, caregiver and widow/spouse survivor of Huntington’s Disease. It is about creating “Awareness” and giving the families affected by Huntington’s Disease a “Voice” to a situation that few understand including friends, family, co-workers, and the community. Huntington’s Disease is REAL and knowledge of the disease and it’s ripple effect on a family is REAL.

This book speaks to at least four communities, those affected by Huntington’s Disease or any chronic, progressive or terminal illness; the spiritual community, those who find strength through faith in the most trying moments; the therapeutic community, those who treat individuals, couples and families affected by illness; and the medical community, those doctors and other medical professionals, whether in primary care or specialists, who treat the patient, their caregivers or other family members of the illness, which can complicate the healing process.

Book Talks & Signings:                 North Haven, CT, USA                      203.985.8246

Purchase a signed copy from me personally at in the “Affair Worth Remembering” tab and order via PayPal, then go to the “Contact Me” tab and enter the code DALLAS15 in the notes section and any special inscription you would like. $1.00 from each book sale will be donated to HDSA. Thanks!

Or-Purchase via Print on Demand through the publisher at:

Shattered Dreams–But Hope

By Elton Higgs

Shattered Dreams–But Hope is a distillation of the experiences of Laquita and Elton Higgs in caring for their two JHD adopted daughters. Laquita and Elton have not only shared their own caregiving experiences at a deeply personal level, but they have also offered observations and recommendations to other HD caregivers about coping with the special challenges and stresses of HD. They address the special characteristics and needs of a JHD patient, measures to preserve the mental and physical health of the caregiver, and ways of dealing with the governmental and medical agencies who must be sought to meet the needs of an HD patient and his/her family. But this is also a book for all long-term caregivers, whatever the disablement of the one being cared for. The concluding chapter portrays what two people of faith have learned about suffering, endurance, and love when grappling with the challenge of caring for a loved one day after day, year after year.

100% of the proceeds will go to HDSA.


Price: $9.00