Attitudes of Individuals At-Risk for Huntington’s Disease on the Suggested Pre-Symptomatic Genetic Testing Protocol

I’m a second year genetic counseling student at the Icahn School of Medicine at Mount Sinai in New York City, and I am conducting a survey for my thesis project on the Huntington’s disease pre-symptomatic genetic testing process. I’m interested in the opinions of those at-risk for developing Huntington’s disease about the existing steps that are recommended in order to receive pre-symptomatic genetic testing results. This survey has been approved by the IRB at the Icahn School of Medicine at Mount Sinai.

 

I’m gathering information through an online survey that should take approximately 15 minutes to complete. It will be anonymous, as I will not be collecting any identifying information. The purpose of this study is to explore how at-risk individuals perceive the process and whether or not it should be reevaluated. If you are interested in participating in this study, please click on the following link: https://www.surveymonkey.com/r/HD_Presymptomatic_Genetic_Testing

 

If you have any questions about this survey, please contact me, Emalyn Cork, at

emalyn.cork@icahn.mssm.edu. Or you may contact Dr. Rosamond Rhodes, PhD at

rosamond.rhodes@mssm.edu.

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