National Office

505 Eighth Avenue, Suite 902
New York, NY 10018
212 242-1968
1-800-345-HDSA (4372)

Chief Executive Officer: Louise Vetter
Extension: 220
e. lvetter@hdsa.org

Executive Assistant: Felicia Vaughn
Extension: 232
e. fvaughn@hdsa.org

Director of Marketing & Communications: Fred Taubman
Marketing strategies to increase awareness and build fundraising dollars to support research, resources, treatment and care for HD families. Website and marketing standards for all HDSA materials and communications.
Extension: 229
e. ftaubman@hdsa.org

Manager of Communications & Event Marketing: Mynelly Perez
HDSA outreach events (Walks, Hoops, etc.), HDSA marketing partners, website and chapters, affiliates and regions. Support National Youth Alliance (NYA) and NYA Scholarship Program, Convention exhibitors and Guthrie Awards Dinner Silent Auction.
Extension: 214
e. mperez@hdsa.org

Director of Development: Jules Greenwald
Major Donors, National Fundraising Initiatives.
Extension: 235
e. jgreenwald@hdsa.org

Development Manager: Robert Coffey
Customer service and reporting, website coordinator, marketing assistant, matching gifts, convention registration and office management, Summer Cash Bonanza, BMW Sweepstakes, Winter Cash Spectacular, Guthrie Awards Dinner, Gift of Hope.
Extension: 210
e. coffeyr@hdsa.org

Donor Perfect Coordinator: Burnesteen Shivers
Database responsibility, credit card and check processing, gift acknowledgment, donor reporting.
Extension: 225
e. bshivers@hdsa.org

Director of Financial & Administrative Management: Nadene Alleyne
Finance and accounting, strategic financial planning, administration services.
Extension: 212
e. nalleyne@hdsa.org

Senior Accountant- National /Regional Operations: Eddie Byrnes
Accounting services.
Extension: 215
e. ebyrnes@hdsa.org

Senior Accountant- Chapter Operations & Accounts Payable: Frances Eisenstein Pam
Extension: 224
e. feisenstein@hdsa.org

Manager of Operations: Kyle Graham

Extension: 211
e. kgraham@hdsa.org

Receptionist/Administrative Office Assistant: D. Marjorie Brown
Administrative support.
Extension: 222
e. dbrown@hdsa.org

Director of Program Services & Advocacy: Debra Lovecky
HDSA Centers of Excellence, education, family services, educational publications and advocacy.
Extension: 228
e. dlovecky@hdsa.org

Manager of Program Services & Advocacy: Jane Kogan, MSW
Extension: 226
e. jkogan@hdsa.org

Information & Fulfillment Aide: Anita Mark-Paul
Customer service and fulfillment for publication orders.

Extension: 219
e. amarkpau@hdsa.org

Acting Director, Med/Sci Programs: Robert Graze
Corporate and foundation support.
Extension: 227
e. rgraze@hdsa.org

Director of Field Development & Operations: Nancy A. Rhodes

Extension: 234

e. nrhodes@hdsa.org

Sr. Manager of Field Development & Operations: Alex Roque
Extension: 233
e. aroque@hdsa.org
Regional staff direction and support for chapters and affiliates in the East. Community Health Charities, United Way and Combined Federated Campaigns.

Field Coordinator: Ashlee Sadler

Extension: 218
e. asadler@hdsa.org