Social Worker (Eastern PA & Delaware)

The Mid-Atlantic Region of the Huntington’s Disease Society of America has an opening for a part-time (40 hours/month) social worker who will assist Huntington’s disease families throughout the Regions of Eastern Pennsylvania and Delaware.  The social worker will respond to Helpline calls and emails; mentor support group leaders; lead support group/s if needed, help plan HDSA Education Events,  provide in-service education to long term care facilities, home health care agencies, and law enforcement and first responder agencies; and develop and maintain a database of community resources for HD families.  The position offers substantial scheduling flexibility, with no set work schedule.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families.

The function of an HDSA Regional Social Worker is to assist individuals and families affected by Huntington’s disease and health care professionals throughout the outlined area by providing an optimum level of support through information and referrals to appropriate resources.


The desirable candidate should be self-motivated with strong public speaking and excellent organizational skills.  Computer proficiency with an emphasis on word processing and database management is required as well as a willingness to develop an understanding of HD and knowledge of local resources.


The candidate is required to have a MSW from an accredited institution.  The candidate is required to hold or be eligible to hold a social worker license in at least one state in the region.  The candidate must provide their own liability coverage. Experience working with populations affected by a neurological or genetic disease is preferred. This is an independent contracting position.  The candidate must reside in one of the states in the region.



  • The social worker will retrieve and answer all helpline calls, emails and letters.
  • A part-time Regional Social Worker should facilitate a minimum of 1 monthly support group. The social worker also oversees and mentors support groups led by a peer or professional.
  • The social worker will serve as a liaison between HDSA (National, Chapter, local Center(s) of Excellence, and/or Affiliate(s)) and the area support group leaders, providing relevant and timely information via email or phone communications, newsletters or by giving presentations at group meetings.
  • The social worker will actively seek opportunities for and provide in-services and HD educational materials to medical, long-term care and law enforcement facilities as well as other appropriate entities.
  • The social worker must work to acquire and regularly update his/her knowledge of HD by reading professional literature, reviewing regional and national HDSA communications, and attending appropriate meetings and/or seminars.
  • All HDSA social workers are required to maintain professional continuing education credits required for social worker licensure.
  • The social worker will develop and maintain a file of community-based and state medical and professional resources available to people with HD and/or their families.
  • Some travel will be required, such as to the HDSA National Convention in the summer and to other cities within the region.  HDSA will reimburse reasonable expenses for approved travel.

For consideration please send resume and salary requirements to: Anne at

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