2016

To view presentations please click on the links below. The links labeled recorded will bring to another website to view the recording of that presentation. Those noted as “presentation only” have a PDF powerpoint presentation. You must have Acrobat Viewer to view them. Please click here if you need to download Acrobat Viewer. Please note that not all workshops have presentations. We thank all of our presenters for sharing their presentations.

Between a Rock & a Hard Place: Helping Young People Cope with Grief, Loss and the Reality of HD

Building Awareness Through Social Media

Demystifying Clinical Trials: What’s it like & why do they need me?

Do I really need a primary care doctor too?

HD 101: Genetics and Disease Progression

I’ve Got the Music in Me: Using Music as Therapy for Everyday Life

Long Term Care- What to Expect

Effective Strategies for Educating Law Enforcement and Medical First Responders on HD
Doug Schulte
Morgan McLane

Exercise and HD

Fundraising: Easy Steps to Success!

Preparing for Your Disability- Disability, Life, Health Insurance, Employee Benefits and Estate Planning

Strategies for Managing Depression

Young Adults as Caregivers

Ask the Scientist… anything!

Advocacy

Family Planning

Huntingtin Lowering Approaches to Treat HD

Hurry Up and Wait: Thinking About Thinking with HD

Talking About HD

Team Hope Walks – If You Build It, They Will Walk!

The How Tos of Social Security Disability

 

Saturday, June 4, 2016

HDSA Research Forum


 

Cognitive Impairment in Huntington’s Disease: Tips for Managing Cognitive Decline Over the Course of the Illness

Doubling Your Volunteer Base and Increasing Support in the Community

Living Positively with HD

Making the Foods You Love Work for You

Potential New Therapies

Your Loved One with Special Needs: Making Their Future More Secure

JHD: Beyond the Diagnosis

Legal Issues

Moving Beyond Mice: Understanding HD in People

Role of Speech-Language Pathologist and HD

Strategies for Managing Aggression

Survivors Guilt

Why is HD Still Diagnosed as a Motor Disease

 

 

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