2013

OPENING CEREMONY (RECORDED)

Welcome
Proclamations

A Message from HDSA Chairman of the Board
Steve Seekins
State of the Society
Louise Vetter, CEO

KEYNOTE SPEAKER

Powerpoint Presentation
Mark Holder, PhD

 

WORKSHOPS

BEHAVIOUR ISSUES/UNAWARENESS AND APATHY

Powerpoint Presentation
Danielle Blinkoff, B.A.

COGNITION AND HD / HD 101

Workshop Recorded
Powerpoint Presentation
Juan Sanchez-Ramos, MD, PhD

MOVEMENT AND HD/PT AND MOVEMENT

Workshop Recorded
Powerpoint Presentation
Meredith Defranco

CAREGIVERS ISSUES / APPLYING FOR DISABILITY 

Power Point Presentation
Art Spencer
Social Security Administration

HOW THE HD GEN WORKS

PowerPoint Presentation
Ed Wild, MD, PhD and Jeff Carroll, PhD

YOUTH/TEENS AGES 12-19-TALKING ABOUT HD WITH PARENTS & FRIENDS

Lauren Holder and Lindsey Zan
Powerpoint Presentation

BEHAVIOUR ISSUES / IRRITABILITY AND DEPRESSION

Workshop recorded
Powerpoint Presentation
Peg Nopoulos, MD

COGNITION AND HD/ JOB ACCOMMODATIONS AND HD

Lisa Dorinzi, MA

MOVEMENT AND HD / MANAGING MOVEMENTS

Workshop Recorded
Powerpoint Presentation
Victor Sung, MD

CAREGIVERS ISSUES/ PREPARING FOR THE FUTURE – LEGAL ISSUES

Sean Scott, Esq.

ADVOCACY AND HD

Paul Lee and Jason Gromley, Esq.

YOUTH AND TEENS AGES 12-19/COPING WITH HD

Stacey Barton, MSW, LCSW
Powerpoint Presentation

SCHOOL AND JHD CHILD

HDSA RESEARCH / KEYNOTE SPEAKER

Keynote Speaker
Michael Hayden, MD, PhD

HDSA RESEARCH / HOT TOPICS

HOT TOPICS
Ed Wild, MD, PhD and Jeff Carroll, PhD

COGNITIVE, BEHAVIORAL AND MOTOR ISSUES / EARLY MOTOR SYMPTOMS

Powerpoint Presentation
Juan Sanchez-Ramos, MD, PhD
workshop recorded

CAREGIVERS ISSUES/PREPARING FOR THE UNKNOWN

Changing Expectations of Caregivers
Amy Woodard, MSW
workshop webcast
Powerpoint Presentation

YOUNG ADULTS/COPING WITH A POSITIVE TEST RESULTS

Powerpoint Presentation
Amy Chesire, LCSW-R, MSG

HDSA RESEARCH

PREDICT Update
Powerpoint Presentation
Jane Paulsen, PhD

COGNITIVE, BEHAVIORAL AND MOTOR SYMPTOMS/ COPING WITH OBSESSIVE/COMPULSIVE BEHAVIORS

Daniell Blinkoff
Powerpoint Presentation

CAREGIVERS ISSUES/TALKING WITH KIDS ABOUT HD

Karen Baker and Cori Robin

LAW ENFORCEMENT AND HD

Lauren Holder

workshop recorded

YOUNG ADULTS/FAMILY PLANING

Powerpoint Presentation
Allison Daley
workshop recorded

HDSA RESEARCH

POTENTIAL NEW TERAPHIES

Moderator: Jane Paulsen, PhD
Speakers: Lisa Stanek, PhD (Genzyme)
Powerpoint Presentation
Dr. David Stamler (Auspex)
Powerpoint Presentation

COGNITIVE, BEHAVIORAL AND MOTOR SYMPTOMS/MANAGING COGNITIVE PROBLEMS

Arik Johnson, PsyD
Powerpoint Presentation
workshop Recorded

CAREGIVERS ISSUES/IN HOME CARE OPTIONS

Powerpoint Presentation
Tina Spinks, PT and Kyle Haynes, PT
Senior Home Care

MANAGING LATE STAGE HD

Victor Sung, MD
workshop Recorded

YOUNG ADULTS/TO TEST OR NOT TO TEST PANEL

Powerpoint Presentation
Moderator: Lynn Ross, LMSW
Panel: Tina Hellum, Andrea Olitsky and Jeanine Smith

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